Form 0920-0469 Data Items Collected

Data Items by Diagnosis Year 1995-2017

Item
#

Record ID and Demographic Section—(Name and
[Number])

Required
Status
1995–2017
Y
Y
Y
Y
Y
Y

New
Changed

Foot
note

New
Name
Change

28

10
20
40
50
80
89

Record Type
Patient ID Number (unique)
Registry ID
NAACCR Record Version
Address at Dx—State
County at DX Analysis

90

County at Dx Reported

Y

94
95
96

County at Dx GeoCode 1990
County at Dx GeoCode 2000
County at Dx GeoCode 2010

Y
Y
Y

3300

Rural-Urban Continuum/Beale Code 1993

Y

1

3310

Rural-Urban Continuum/Beale Code 2003

Y

1

3312

Rural-Urban Continuum/Beale Code 2013

Y

1

100
110
120
130
135
145
364
365
367
160
161
190
191
192

Address at Dx—Postal Code
Census Tract 1970/80/90
Census Cod Sys 1970/80/90
Census Tract 2000
Census Tract 2010
Census Tract Poverty Indicator
Census Tr Cert 1970/80/90
Census Tr Certainty 2000
Census Tr Certainty 2010
Race 1
Race 2
Spanish/Hispanic Origin
NHIA Derived Hisp Origin
IHS Link

Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y

July 2018
NPCR-CSS 2018 Data Submission
1995–2017 Diagnosis Years

1

2
2
21
2
2

3
4

193

Race--NAPIIA

220
230
240
241
252
254

Sex
Age at Diagnosis
Date of Birth
Date of Birth Flag
Birthplace State
Birthplace Country

Item
#
380
390
391
400
410
440
490
500
501
522
523
630
Item
#
1260
1261
1270
1271
1290
1292
1294
1340
1360
1380
1390
1400
1410
1420

Y

Cancer Identification Section—(Name and [Number])
Sequence Number—Central
Date of Diagnosis
Date of Diagnosis Flag
Primary Site
Laterality
Grade
Diagnostic Confirmation
Type of Reporting Source
Casefinding Source
Histologic Type ICD-O-3
Behavior Code ICD-O-3
Primary Payer at DX
Treatment First Course Section—(Name and [Number])
Date of Initial Rx—SEER
Date of Initial Rx Flag
Date of 1st Crs Rx—COC
Date of 1st Crs Rx Flag
Rx Summ—Surg Primary Site
Rx Summ—Scope Reg LN Sur
Rx Summ—Surg Oth Reg/Dis
Reason for No Surgery
RX Summ—Radiation
RX Summ—Surg/Rad Seq
Rx Summ—Chemo
Rx Summ—Hormone
Rx Summ—BRM
Rx Summ—Other
July 2018
NPCR-CSS 2018 Data Submission
1995–2017 Diagnosis Years

Y
Y
Y
Y
Y
Y
Required
Status
1995–2017
Y
Y
Y
Y
Y
Y
Y
Y
As available
Y
Y
As available
Required
Status
1995–2017
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y

3

19
5
5

6
6
6
6
7
7
7
7
7
7
7
7
7
7

1570
1639
3250
1285
Item
#
820
830
759
760
756
2800
2810
2820
2830
2840
2850
2860

2880

2890
2900
2862
2863
2864
2865
2867

Rad—Regional Rx Modality
RX Summ—Systemic/Sur Seq
RX Summ--Transplant/Endocr
RX Summ--Treatment Status
Stage/Prognostic Factors Section—(Name and [Number])
Regional Nodes Positive
Regional Nodes Examined
SEER Summary Stage 2000
SEER Summary Stage 1977
Tumor Size Summary
CS Tumor Size
CS Extension
CS Tumor Size/Ext Eval
CS Lymph Nodes
CS Lymph Nodes Eval
CS Mets at DX
CS Mets Eval
CS Site-Specific Factor 1 for:
C50 (breast)
C70.0-C70.9, C71.0-C71.9, C72.0-C72.9, C75.1C75.3 (brain, CNS)
C34 (lung)
C384 (pleura)
C692 with 9510/3, 9511/3, 9512/3, 9513/3
(retinoblastoma)
C619 (prostate)
CS Site-Specific Factor 2 for:
C50 (breast)
C54, C55 (corpus uteri)
CS Site-Specific Factor 3 for C619 (prostate)
CS Site-Specific Factor 8
C50 (breast)
C619 (prostate)
CS Site-Specific Factor 9 for C50 (breast)
CS Site-Specific Factor 10 for C619 (prostate)
CS Site-Specific Factor 11 for C50 (breast)
CS Site-Specific Factor 13 for C50 (breast)
July 2018
NPCR-CSS 2018 Data Submission
1995–2017 Diagnosis Years

Y
Y
Y
Y
Required
Status
1995–2017
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y

7
7
7
7

18
18
8
8
9
9
10
10
10
11
10
10
12
22

Y
Y
Y

13
13
13

As Available
Y
Y
Y

12

Y
As Available
Y
As Available
Y
Y

12

13
13

12
12
12

2868
2869
2879
2937

CS Site-Specific Factor 14 for C50 (breast)
CS Site-Specific Factor 15 for breast (C50)
CS Site-Specific Factor 25
CS Version Input Current

Y
Y
Y
Y

3020

Derived SS2000

Y

12
23
24
13
17

3769
3000
3430
880
890
900
910
920
940
950
960
970
980
1060
3650
3655
Item
#
1750
1751
1760
1784
1787
1790
1791
1910
1920
Item
#
1990

Over-ride CS 20
Derived AJCC-6 Stage Grp
Derived AJCC-7 Stage Grp
TNM Path T
TNM Path N
TNM Path M
TNM Path Stage Group
TNM Path Descriptor
TNM Clin T
TNM Clin N
TNM Clin M
TNM Clin Stage Group
TNM Clin Descriptor
TNM Edition
NPCR Derived Clin Stage Group
NPCR Derived Path Stage Group
Follow-Up/Recurrence/Death Section—(Name and
[Number])
Date of Last Contact
Date of Last Contact Flag
Vital Status
Survival Months Active Followup
Survival Months Presumed Alive
Follow-Up Source
Follow-Up Source Central
Cause of Death
ICD Revision Number
Over-Rides/Conversion/System Admin. Section—(Name
and [Number])
Over-Ride Age/Site/Morph
July 2018
NPCR-CSS 2018 Data Submission
1995–2017 Diagnosis Years

Y
As available
As available
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Y
Required
Status
1995–2017
Y
Y
Y
As available
As available
As available
Y
Y
Y
Required
Status
1995–2017
Y

17
14
14
25
25
25
25
25
25
25
25
25
25
25
25
25

New
New

26
26
15
15

2000
2010
2020
2030
2040
2050
2060
2070
2071
2074

Over-Ride SeqNo/DxConf
Over-Ride Site/Lat/Sequence Number
Over-Ride Surg/Dxconf
Over-Ride Site/Type
Over-Ride Histology
Over-Ride Report Source
Over-Ride Ill-define Site
Over-Ride Leuk, Lymphoma
Over-Ride Site/Behavior
Over-Ride Site/Lat/Morph

Y
Y
Y
Y
Y
Y
Y
Y
Y
Y

9980
9981

EDP MDE Link
EDP MDE Link Date

Required
Status
1995–2017
Y
Y

9960

Height

As available

Item
#

NPCR Site-Specific Field

16
16
14
20

9961

Weight

14

As available

20

9965

Tobacco Use Cigarettes

14

As available

20

9966

Tobacco Use Smoke

14

As available

20

9967

Tobacco Use Smokeless

14

As available

20

9968
9990
9991
9992

Tobacco Use NOS
IHS Purchased/Referred Care Delivery Area
(PRCDA)
Urban Indian Health Organization (UIHO)
Urban Indian Health Organization (UIHO)
Facility

14
20

As available
Y

New

Y
Y

New
New

NOTE 1: Code “999” for unknown and invalid. Do not include cases with code “998” in the
submission file. If State law precludes the registry from identifying specific counties on a file of
individual records, recode all valid county codes to “000” and convert county codes to the
derived Rural Urban Continuum variables. The Rural Urban Continuum variables are
required only if County at Dx Reported is not submitted. See Submission Specifications
document for more details.
July 2018
NPCR-CSS 2018 Data Submission
1995–2017 Diagnosis Years

27
27
27

90

County at Dx Reported

Y

3300 Rural-Urban Continuum/Beale Code 1993
Y
3310 Rural-Urban Continuum/Beale Code 2003
Y
3312 Rural-Urban Continuum/Beale Code 2013
Y
NOTE 2: Census Tract 2000 [130] is recommended for reportable cases diagnosed in 19982002 and required for reportable cases diagnosed in 2003 and later. Census Tract 2010 [135]
is required for reportable cases diagnosed in 2010 and later.
130 Census Tract 2000
Y
135 Census Tract 2010
Y
365 Census Tr Certainty 2000
Y
367 Census Tr Certainty 2010
Y
NOTE 3: Report the results from the NAACCR*Prep Program. See the Submission
Specifications document and/or Atachment 1 for more details. Please note that code 9,
unknown, is not a valid code for the NHIA data item.
191
193

NHIA Derived Hisp Origin
Race--NAPIIA

Y
Y

NOTE 4: Report the results of cases submitted for IHS linkage using codes 0 or 1. See the
Submission Specifications document for further details.
192

IHS Link

Y

NOTE 5: For reportable cases diagnosed in 2001 or later, data are to be coded using the ICDO-3 manual and submitted with these original ICD-O-3 values. For reportable cases diagnosed
before 2001, data are to be coded using the ICD-O-2 manual. Prior to submission, convert these
ICD-O-2 codes to ICD-O-3 codes.
522

Histologic Type ICD-O-3

Y

523 Behavior Code ICD-O-3
Y
NOTE 6: Submit either the SEER or COC field; for reportable cases diagnosed prior to 2006,
submit as available.
1260 Date of Initial Rx—SEER
Y
1261 Date of Initial Rx Flag
Y
1270 Date of 1st Crs Rx—COC
Y
1271 Date of 1st Crs Rx Flag
Y
NOTE 7: For reportable cases diagnosed prior to 2006, submit as
available. Report the following treatment information for diagnosis
years and primary sites indicated below. CCRs should consolidate
all treatment data before submission to CDC.
1285 RX Summ--Treatment Status
Y
1290 Rx Summ—Surg Primary Site
Y
July 2018
NPCR-CSS 2018 Data Submission
1995–2017 Diagnosis Years

DX Yr
Req

Primary
Site(s)

2010-2017 All sites
2001-2017 All sites

1292
1294
1340
1360

Rx Summ—Scope Reg LN Sur
Rx Summ—Surg Oth Reg/Dis
Reason for No Surgery
RX Summ—Radiation

Y
Y
Y
Y
Y

2001-2017
2001-2017
2001-2017
2006-2011
2012-2014

1380 RX Summ—Surg/Rad Seq

Y
Y
Y

2015-2017
2006-2011
2012-2014

1390 Rx Summ—Chemo

Y
Y
Y

2015-2017
2006-2011
2012-2014

Y
Y

2015-2017
2006-2011

Y

2012-2014 Breast,
Colon,
Rectum
2015-2017 All sites

1400 Rx Summ—Hormone

Y
1410 Rx Summ—BRM

Y
Y

1420 Rx Summ—Other

Y
Y
Y

1570 Rad—Regional Rx Modality

Y
Y
Y

1639 RX Summ—Systemic/Sur Seq

Y
Y
Y

July 2018
NPCR-CSS 2018 Data Submission
1995–2017 Diagnosis Years

All sites
All sites
All sites
All sites
Breast,
Colon,
Rectum
All sites
All sites
Breast,
Colon,
Rectum
All sites
All sites
Breast,
Colon,
Rectum
All sites
All sites

2006-2011 All sites
2012-2014 Breast,
Colon,
Rectum
2015-2017 All sites
2006-2011 All sites
2012-2014 Breast,
Colon,
Rectum
2015-2017 All sites
2006-2011 All sites
2012-2014 Breast,
Colon,
Rectum
2015-2017 All sites
2006-2011 All sites
2012-2014 Breast,
Colon,

Rectum
Y
2015-2017 All sites
3250 RX Summ--Transplant/Endocr
Y
2006-2011 All sites
Y
2012-2014 Breast,
Colon,
Rectum
Y
2015-2017 All sites
NOTE 8: For reportable cases diagnosed prior to 2001, code using SEER Summary Staging
Guide 1977. For reportable cases diagnosed in 2001-2003 and 2015 and later, code using SEER
Summary Staging Manual 2000. Report Summary Stage 2000 as available for diagnosis years
2004-2014.
759 SEER Summary Stage 2000
Y
760 SEER Summary Stage 1977
Y
NOTE 9: For reportable cases diagnosed 2008-2015, CS Tumor Size [2800] is required. For
cases diagnosed prior to 2008, submit as available. Tumor Size Summary [756] is required to
be submitted for reportable cases diagnosed 2016 and forward.
756 Tumor Size Summary
Y
2800 CS Tumor Size
Y
NOTE 10: Required to be submitted for reportable cases diagnosed 2010-2015. Submit as
available for reportable cases diagnosed 2004-2009.
2810 CS Extension
Y
2820 CS Tumor Size/Ext Eval
Y
2830 CS Lymph Nodes
Y
2850 CS Mets at DX
Y
2863 CS Site-Specific Factor 9 for C50 (breast)
Y
NOTE 11: Required to be submitted for reportable cases diagnosed 2011-2015. Submit as
available for cases diagnosed 2004-2010.
2840 CS Lymph Nodes Eval
Y
2860 CS Mets Eval
Y
NOTE 12: Required to be submitted for reportable cases diagnosed 2010 and later. Submit
SSF 1 and SSF 2 as available for reportable cases diagnosed 2004-2009.
2880 CS Site-Specific Factor 1 for:
C50 (breast)
Y
2890 CS Site-Specific Factor 2 for:
C50 (breast)
Y
2862 CS Site-Specific Factor 8
C50 (breast)
Y
2865 CS Site-Specific Factor 11 [2865] for C50
Y
(breast)
July 2018
NPCR-CSS 2018 Data Submission
1995–2017 Diagnosis Years

2867 CS Site-Specific Factor 13 [2867] for C50
Y
(breast)
2868 CS Site-Specific Factor 14 [2868] for C50
Y
(breast)
NOTE 13: Required to be submitted for reportable cases diagnosed 2004-2015.
2880 CS Site-Specific Factor 1 for:
C34 (lung)
Y
C384 (pleura)
Y
C692 with 9510/3, 9511/3, 9512/3, 9513/3 Y
(retinoblastoma)
2890 CS Site-Specific Factor 2 for C54, C55
Y
(corpus uteri)
2900 CS Site-Specific Factor 3 for C619
Y
(prostate)
3020 Derived SS2000
Y
NOTE 14: Submit as available for reportable cases diagnosed 2004-2017.
3000 Derived AJCC-6 Stage Grp
As available
3430 Derived AJCC-7 Stage Grp
As available
9960 Height
As available
9961 Weight
As available
9965 Tobacco Use Cigarettes
As available
9966 Tobacco Use Smoke
As available
9967 Tobacco Use Smokeless
As available
9968 Tobacco Use NOS
As available
NOTE 15: For reportable cases diagnosed 2006 and later, Follow-Up Source Central [1791] is
required. For cases diagnosed prior to 2006, Follow-Up Source [1790] submit as available.
1790 Follow-Up Source
As available
1791 Follow-Up Source Central
Y
NOTE 16: For linkage results of reportable breast, cervical, and colorectal cancer cases.
Report the EDP MDE Link Variable and EDP MDE Link Date in the columns for the
appropriate NAACCR Record layout version as specified in the 2017 NPCR-CSS Submission
Specifications.
9980 EDP MDE Link
Y
9981 EDP MDE Link Date
Y
NOTE 17: Over-Ride CS 20 [3769] is designated as a flag to identify cases directly coded using
SEER Summary Stage 2000 [759]. Use code 1 to indicate when SEER Summary Stage 2000 is
directly coded, rather than derived using the Collaborative Staging Data Collection System.
Otherwise, “Over-Ride CS 20” must be blank.
3769 Over-ride CS 20
3020 Derived SS2000

Y
Y
July 2018
NPCR-CSS 2018 Data Submission
1995–2017 Diagnosis Years

NOTE 18: For reportable COLORECTAL CANCER CASES ONLY; submit Regional Nodes
Positive [820] and Regional Nodes Examined [830] as available for diagnosis years 1995-2011.
For diagnosis year 2012 and later, Regional Nodes Positive [820] and Regional Nodes
Examined [830] are required for all sites.
820 Regional Nodes Positive
Y
830 Regional Nodes Examined
Y
NOTE 19: For reportable cases diagnosed 2012 forward, submit as available.
501 Casefinding Source
As available
NOTE 20: Report the following data items in the columns for the appropriate NAACCR Record
layout version as specified in the 2017 NPCR-CSS Submission Specifications.
9960 Height
As available
9961 Weight
As available
9965 Tobacco Use Cigarettes
As available
9966 Tobacco Use Smoke
As available
9967 Tobacco Use Smokeless
As available
9968 Tobacco Use NOS
As available
NOTE 21: Required to be submitted for reportable cases diagnosed 2014 and forward. Submit
as available for reportable cases diagnosed prior to 2014.
145 Census Tract Poverty Indicator
Y
NOTE 22: Required to be submitted for reportable cases diagnosed 2011 and forward. Submit
as available for reportable cases diagnosed 2004-2010.
2880 CS Site-Specific Factor 1 for:
C70.0-C70.9, C71.0-C71.9, C72.0-C72.9, Y
C75.1-C75.3 (brain, CNS)
NOTE 23: Required to be submitted for reportable cases diagnosed 2011 and forward. Submit
as available for reportable cases diagnosed 2010.
2869 CS Site-Specific Factor 15 for breast (C50)
Y
NOTE 24: Required to be submitted for reportable cases diagnosed 2010 and forward.
2879 CS Site-Specific Factor 25
Y
NOTE 25: Required to be submitted for reportable cases diagnosed 2016 and forward. Submit
as available for reportable cases diagnosed 2015.
880
890
900
910
920
940
950

TNM Path T
TNM Path N
TNM Path M
TNM Path Stage Group
TNM Path Descriptor
TNM Clin T
TNM Clin N

Y
Y
Y
Y
Y
Y
Y

July 2018
NPCR-CSS 2018 Data Submission
1995–2017 Diagnosis Years

960 TNM Clin M
Y
970 TNM Clin Stage Group
Y
980 TNM Clin Descriptor
Y
1060 TNM Edition
Y
3650 NPCR Derived Clin Stage Group
Y
3655 NPCR Derived Path Stage Group
Y
NOTE 26: Submit Survival Months Active Follow-up only if active follow-up is conducted on all
cases. Submit Survival Months Presumed Alive only if linkage with the NDI is conducted and
match results included in the submission file.
1784 Survival Months Active Follow-up
As available
1787 Survival Months Presumed Alive
As available
NOTE 27: Report the results derived using NAACCR*Prep in columns 1370-1372.
9990 IHS Purchased/Referred Care Delivery Area Y
(PRCDA)
9991 Urban Indian Health Organization (UIHO)
Y
9992 Urban Indian Health Organization (UIHO)
Y
Facility
NOTE 28: Report the results for County at DX Analysis as derived using NAACCR Prep in
columns 2355-2357.

July 2018
NPCR-CSS 2018 Data Submission
1995–2017 Diagnosis Years