Proposed changes to focus group guide

Protocol proposed revisions 2019-11-7b.xlsx

The World Trade Center Health Program: Impact Assessment and Strategic Planning for Translational Research (Part 1, Formative Research: Focus Groups)

Proposed changes to focus group guide

OMB: 0920-1252

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Submitted and approved version Change RAND's proposed revisions
1.      Could each of you please describe what your specific role is in the program, or how you interact with the WTCHP? No change
2.      When you hear the phrase, "scientific research," what do you think of? What comes to your mind? omitted
3.    Why do you think that the WTCHP includes a research mission? minor wording change, moved questions in 9 as follow up to this question Why is research part of the WTCHP? Follow up: Who is using, or who should be using the results of WTCHP research? How are the results being used? How should the results be used?
4.      Have you heard of the term or are familiar with the term, “translational research?” Regardless of how familiar you are with the term, what do you think of when I say “translational research?” omitted for Members, no change for non-Members
5.      What is needed to make research “translational?” omitted for Members, no change for non-Members
6.      What do you think about this list of research topics? No change
7.      What do you think about this ranking? No change
8.      What do you think are the most pressing questions about the health effects of the 9/11 attacks? And are these questions being addressed by the research that the WTCHP supports? No change
9.      Who is using, or who should be using the results of WTCHP research? How are the results being used? How should the results be used? moved up as follow up to question 3
10.   What do you think are the major barriers that prevent the research from being used, in other words, acted on, by this/these group(s)? Minor wording change for Members only, added the second part of this question to address facilitators, not only barriers Members: What is standing in the way of your being connected to WTCHP research? What is making it possible for you to be connected to WTCHP research?
11.   Is the Research-to-Care model familiar to you? Who has heard of it? omitted
12.   We are interested in your ideas for the Research-to-Care model—how would you describe the steps in the process of doing research that leads to better care and outcomes for WTCHP members? omitted
13.   What parts of this diagram are relevant to you? Does this model reflect your own experience with the program? Why or why not? Wording change to ask a more targeted question about what we want to know with respect to the RTC model How have you learned about WTCHP research findings?How would you like to learn about WTCHP research in the future?
14.   What is missing from the Research-to-Care logic model? omitted
15.   Last question: all the way on the right here: what do you think about these outcomes? Is there anything that you would add to what’s shown here? Any you would change or take away? omitted for Members; minor wording change for non-Members The WTCHP has come up with a list of short-, medium-, and long-term outcomes that it aims to achieve through its research. What aspects of the WTCHP support the translation of research into these outcomes? What could the Program be doing differently to help translate its research into these outcomes?
16.   Before we wrap up, is there anything else that has come to mind during the course of this discussion, or important points about research within the WTCHP that you wanted to bring up? No change
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