Privacy Act Memo

DATE:

December 7, 2021

TO:

Diane Kreinbrink
Senior Management Analyst
Office of Management Policy and Compliance
National Cancer Institute (NCI)

FROM:

NIH Privacy Act Officer

SUBJECT: Applicability of the Privacy Act: NCI Resources, Software, and Data Sharing Forms
I have reviewed the OMB renewal submission, NCI Resources, Software, and Data Sharing Forms. The
purposes of the proposed collections are to allow data sharing generated from one research study to be
used to answer questions beyond the original study. It reinforces open scientific inquiry, encourages
diversity of analysis, supports studies on data collection methods and measurement, facilitates the
education of new researchers, and enables the exploration of topics not envisioned by the initial
investigators. Biomedical researchers and data scientists can use the NCI cloud resources, web interface,
and computational workspace to query, submit data, analyze, and visualize data.
I have determined that the Privacy Act will apply because several of the systems and electronic data
collections, within the generic clearance, involve the collection of personally identifiable information
(PII) and that information is used as unique identifiers to retrieve records. Each electronic collection of
PII will maintain its own Privacy Impact Assessment, including documentation of the personally
identifiable information collected, maintained, and used to retrieve data.
This data collection is covered by the following Privacy Act System of Records
 09-25-0200, “Clinical, Basic and Population-based Research Studies of the National Institutes of
Health (NIH), HHS/NIH/OD.”
 09-25-0036, “Extramural Awards and Chartered Advisory Committees (IMPAC 2)”
 09-90-1401, “Records About Restricted Dataset Requesters”
If you have questions, please contact me at (301) 402-6469.

Dustin B.
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Digitally signed by Dustin
B. Close -S
Date: 2021.12.07 12:35:00
-05'00'

Dustin Close
NIH Privacy Act Officer