Instructions Cancer Data Service

Attach 5 - Instructions - Cancer Data Service.pdf

Generic Clearance for National Cancer Institute (NCI) Resources, Software, and Data Sharing Forms

Instructions Cancer Data Service

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National Cancer Institute - Cancer.gov

Data Sharing

Submitting Research Data
ALSO IN THIS
SECTION

Policies
Accessing Data
Genomic Data
Sharing

Data sharing allows data generated from one research study
to be used to answer questions beyond the original study. It
reinforces open scientific inquiry, encourages diversity of
analysis, supports studies on data collection methods and
measurement, facilitates the education of new researchers,
enables the exploration of topics not envisioned by the initial
investigators, and permits the creation of new datasets when
data from multiple sources are combined.
The following table highlights several data repositories
available through the NCI Cancer Research Data Commons
(CRDC), where data can be submitted. Please note it is not a
comprehensive list.

Submitting Data to the NCI Cancer Research Data
Commons

The CRDC provides repositories to store diverse data types.
Currently, data submission requests can be made by
completing an application at each target repository’s website
or by contacting the repository’s helpdesk.
Data Domains

Target
Repository*

Submit

Genomic -

Nonharmonized
genomic data

Cancer Data
Service

[email protected]

Genomic -

Harmonized
genomic data
(e.g., tumornormal pair)

Genomic Data
Commons

https://gdc.cancer.gov/data-submission-request-form

Proteomic -

Mass
Spectrometry

Proteomic
Data Commons

https://pdc.cancer.gov/pdc/submit-data

Proteomic -

Other (e.g.,
Reversephase protein
arrays)

Cancer Data
Service

[email protected]

Imaging -

Radiology

The Cancer
Imaging
Archive**
(Imaging Data
Commons in
2021)

https://www.cancerimagingarchive.net/primary-data/

Data Domains

Target
Repository*

Submit

Imaging -

Digital
Pathology

The Cancer
Imaging
Archive**
(Imaging Data
Commons in
2021)

https://www.cancerimagingarchive.net/primary-data/

Imaging -

Other (e.g.,
Cellular
Imaging)

Cancer Data
Service
(Imaging Data
Commons in
2021)

[email protected]

Clinical -

Demographics,
phenotypes
Other -

Flow
cytometry,
videos, etc.

NCBI
dbGaP
CRDC as
appropriate

Figshare (up to
20 GB)

https://www.ncbi.nlm.nih.gov/gap/docs/submissiongu
[email protected]

https://nih.figshare.com/f/about

*CRDC is under active development and target repositories
may change as new components become available.

** All clinical imaging data will need to be de-identified
through The Cancer Imaging Archive (TCIA) before storing on
the Imaging Data Commons (IDC).

 
Submitting Genomic Data

Submitting genomic research data enables translating
research findings into knowledge, products, and procedures
that improve human health. NCI supports and complies with
all NIH data sharing policies including the NIH Genomic Data
Sharing (GDS) Policy that:

Promotes broad and robust sharing of human and nonhuman data from a wide range of genomic research
Ensures appropriate protections for research involving
human data and oversight of research conduct, data
quality, data management, data sharing, and data use
Researchers submitting genomic data should refer to the
data practices, file formats, resources, and processes
appropriate for their role:
Extramural Grant Applicants or Grantees
Non-NIH Funded Investigators
Intramural Investigators
For an overview of resources and instructions to request to
submit genomic data to NIH/NCI repositories, review the
Genomic Data Sharing page.

R E L AT E D R E S O U RC E S

Preparing Genomic Data for NCI Repositories
File Formats for Submitting Genomic Data
Key Documents for Genomic Data Sharing
Updated: Sep 24, 2020

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