ACF Privacy and Confidentiality Toolkit Case Studies

Initial questions to ask potential case study sites

Thank you for taking the time to answer the following questions. Before we begin, I need to tell you that a Federal agency may not conduct or sponsor, and no individual or entity is required to respond to, nor shall an individual or entity be subject to a penalty for failure to comply with a collection of information subject to the requirements of the Paperwork Reduction Act of 1995, unless that collection of information displays a currently valid OMB Control Number. The OMB number for this information collection is 0970-0531 and the expiration date is 7/31/2022.

1) Would your data sharing initiative be interested in taking part in the ACF Data Privacy and Confidentiality project as a case study site? If yes, please respond to the remaining questions.

2) How long has your data sharing initiative been operational? Are operations ongoing?

3) From which sectors does your data sharing initiative receive data? (Select all that apply.)

• Human services

• Health care

• Education

• Criminal justice

4) Does your system include multi-generational data (i.e., data from more than one generation of a family such as parents and children)?

5) Do your data-contributing partners include both governmental and non-governmental entities?

6) How many entities have contributed data to your data sharing initiative in the past year?

7) Does your data sharing initiative share data across state lines?

8) Do you have both internal and external data users?

9) How many external data users are given access to your data in a typical year?

10) Does your data sharing program add value through analysis of data and development of data products?

11) Do you feel your operations can be emulated by others or are your circumstances unique?

12) Does your system have virtual data access and sharing?

13) Are there enforceable commitments in legal agreements between data partners?

14) Do your data intake procedures emphasize the following? (select all that apply)

• quality assurance

• data integrity

• data disclosure risk reduction

• documentation

15) What data methods do you use to block efforts to re-identify persons? (select all that apply)

• Restrict access

• Remove direct identifiers

• Data coarsening (recodes, variables suppression)

• Data anonymization (perturbation, synthetic, formal privacy)

• Other specify