Privacy Statement

Appendix F. Privacy Statement

Privacy Statement

The purpose of this screen is to collect personal contact information to include you in the National ALS Registry and make sure we do not already have your information. While providing this information is voluntary, failure to do so may result in your not being included in the ALS National Registry. Your decision to provide the requested information on the National ALS Registry screen constitutes your implicit consent that the ATSDR may share this information with appropriate ATSDR administrative staff, scientists, researchers, and contractors in order to facilitate creation of the National ALS Registry and further research on ALS. The information requested here is collected under the authority of the ALS Registry Act, Public Law No: 110-373.

NOTE: your personal information is not accessible by anyone other than authorized individuals for official business. The ONLY information viewable by the general population is information on ALS and aggregate information.