CHD FG Email

Appendix A CHD FG Email

Dear <Participant Name>,

The National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention (CDC) is holding focus groups with people born with a congenital heart defect (CHD). We are reaching out to you because you participated in CH STRONG, or the Congenital Heart Survey to Recognize Outcomes, Needs, and well-beinG, between 2016 and 2019 and agreed to be contacted in the future. The purpose of the focus groups is to learn about your healthcare experiences and any challenges you might have getting the care you need for your heart. The focus groups will be held online using a tablet, laptop, or desktop computer. Some more information about the focus group is below.

• You must be 18 years or older.

• The focus groups will last approximately 90 minutes.

• We ask that you keep your camera on during the entire focus group.

• You will receive $75 for your time.

• The focus groups will be recorded only to help with note taking and will not be shared.

• Nothing said during the focus groups will be linked to your name.

• Your participation in the focus group is voluntary and you can refuse to answer any question for any reason. Also, you can stop participating at any time, for any reason, without penalty.

• The information collected will help the CDC to understand the healthcare experiences of people with CHD, and shape projects to help people with CHD get the care they need for their heart.

If you are interested in participating in a focus group, please use the link below to answer some short questions to confirm that you are eligible to participate.

<Link>

If you have any questions about the project or your participation, you may contact Lindsay Gutekunst, Project Director, at [email protected].

Sincerely,

L indsay Gutekunst  |  Senior Vice President

(202) 585-2922 (office) 

[email protected]

733 10th Street NW Suite 500, Washington, DC 20001

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