OMB control number
[NCBDDD] Focus Groups Among Adults with or Caring for Individuals with Congenital Heart Defects (CHD), Muscular Dystrophy (MD), and Spina Bifida (SB).
OMB 0920-1433 ยท HHS/CDC.
OMB 0920-1433
The purpose of this project is to conduct focus groups among adults with or caring for individuals with congenital heart defects (CHD), muscular dystrophy (MD), and spina bifida (SB) to obtain firsthand perspectives on the types of care individuals receive with a special focus on: receipt of and access to medical care and barriers and facilitators to accessing, receiving, or reengaging care; the journey to diagnosis; and the transition period from pediatric to adult care (for persons diagnosed during childhood). This change request includes minor modifications to the screener and the discussion guide. The burden is not affected.
The latest form for [NCBDDD] Focus Groups Among Adults with or Caring for Individuals with Congenital Heart Defects (CHD), Muscular Dystrophy (MD), and Spina Bifida (SB). expires 2027-05-31 and is listed under ICR 202501-0920-008.
Latest Forms, Documents, and Supporting Material
SB Focus Group Guide
Change Request Memo - EO14168_02242025_final.docx
SP Focus Group GuideAll Historical Document Collections
| Reference | Filing | Received | Concluded | Action |
|---|---|---|---|---|
| 202501-0920-008 | No material or nonsubstantive change to a currently approved collection | 2025-01-28 | ||
| 202403-0920-012 | New collection (Request for a new OMB Control Number) | 2024-04-02 | Approved without change |
OMB Details
CHD Screening Tool
Federal Enterprise Architecture: Health - Public Health Monitoring
| Form | Name | Electronic access | Type |
|---|---|---|---|
| Form n/a | CHD Screening Tool | Fillable Fileable | Form and instruction |
Review document collections for all forms, instructions, and supporting documents - including paper/printable forms.