Austism Spectrum Disorder (ASD) Research Portfolio Analysis, (NIMH)

Forms and Documents

Document Name	Status

No forms / supporting documents in this ICR. Check IC Document Collections.

IC Document Collections

IC ID	Document Title	Status
238769	Autism Spectrum Disorder (ASD) Research Funder International Private Form	Modified
238768	Austism Spectrum Disorder (ASD) Reasearch Funder International Goverment Form	Modified
238767	Autism Spectrum Disorder (ASD) Research Funder - U.S. Private Form	Modified
238766	Austism Spectrum Disorder -Research Funders- U.S. Federal Form	Modified

ICR Details

OMB Control No: 0925-0682	ICR Reference No: 202512-0925-002
Status: Received in OIRA	Previous ICR Reference No: 202212-0925-001
Agency/Subagency: HHS/NIH	Agency Tracking No: 20257
Title: Austism Spectrum Disorder (ASD) Research Portfolio Analysis, (NIMH)
Type of Information Collection: Revision of a currently approved collection	Common Form ICR:  No
Type of Review Request: Regular	Date Submitted to OIRA: 02/10/2026

	Requested	Previously Approved
Expiration Date	36 Months From Approved	02/28/2026
Responses	1,893	1,630
Time Burden (Hours)	474	408
Cost Burden (Dollars)	0	0

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Abstract: This is a revision of a currently approved request where the National Institute of Mental Health (NIMH) Office of National Autism Coordination (ONAC), on behalf of the Interagency Autism Coordinating Committee (IACC), plans to continue conducting comprehensive portfolio analyses of major autism spectrum disorder (ASD) research funders. The purpose of the annual autism research portfolio analysis is to collect research funding data from U.S. and international ASD research funders, to assist the IACC in fulfilling the requirements of the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act of 2024, and to inform stakeholders of the funding landscape and current directions for ASD research. These analyses will continue to examine the extent to which current funding and research topics align with the IACC Strategic Plan for Autism Research, Services, and Policy. The findings will also help to guide future funding priorities by outlining current gaps and opportunities in ASD research as well as serving to highlight research activities and progress.

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Authorizing Statute(s): US Code: 42 USC 201 Name of Law: Combating Autism Act
  

Citations for New Statutory Requirements: None

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Associated Rulemaking Information
RIN:	Stage of Rulemaking:	Federal Register Citation:	Date:
	Not associated with rulemaking

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Federal Register Notices & Comments
60-day Notice:	Federal Register Citation:	Citation Date:
	90 FR 52685	11/21/2025
30-day Notice:	Federal Register Citation:	Citation Date:
	91 FR 5504	02/06/2026
Did the Agency receive public comments on this ICR? No

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Number of Information Collection (IC) in this ICR: 4

IC Title	Form No.	Form Name
Austism Spectrum Disorder (ASD) Reasearch Funder International Goverment	1	Application
Austism Spectrum Disorder -Research Funders- U.S. Federal	1	Application
Autism Spectrum Disorder (ASD) Research Funder - U.S. Private	1	Application
Autism Spectrum Disorder (ASD) Research Funder International Private	1	Application

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ICR Summary of Burden

	Total Request	Previously Approved	Change Due to New Statute	Change Due to Agency Discretion	Change Due to Adjustment in Estimate	Change Due to Potential Violation of the PRA
Annual Number of Responses	1,893	1,630	0	263	0	0
Annual Time Burden (Hours)	474	408	0	66	0	0
Annual Cost Burden (Dollars)	0	0	0	0	0	0

Burden increases because of Program Change due to Agency Discretion: Yes

Burden Increase Due to: Miscellaneous Actions

Burden decreases because of Program Change due to Agency Discretion: No

Burden Reduction Due to:

Short Statement: Compared to the previous application, there is a slight increase in burden hours per data call due to an increase in the number of U.S. respondents and an increase in the number of projects reported by these respondents. The number of U.S. federal and private funders and number of projects were estimated based on data in the 2021-2022 Autism Research Portfolio Analysis Report (in progress), since the same funders will be included in ONAC’s future analyses. This number of funders has grown from 26 in 2020 to 33 funders in 2022, and the number of autism research projects has grown from 1,573 projects in 2020 to 1,705 projects in 2022. Compared to the previous application, there is a slight increase in the annualized total cost to the federal government due to inflation and staffing changes.

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Annual Cost to Federal Government: $94,042

Does this IC contain surveys, censuses, or employ statistical methods? No

Does this ICR request any personally identifiable information (see OMB Circular No. A-130 for an explanation of this term)? Please consult with your agency's privacy program when making this determination.     Yes

Does this ICR include a form that requires a Privacy Act Statement (see 5 U.S.C. §552a(e)(3))? Please consult with your agency's privacy program when making this determination.     Yes

Is this ICR related to the Affordable Care Act [Pub. L. 111-148 & 111-152]? No

Is this ICR related to the Dodd-Frank Wall Street Reform and Consumer Protection Act, [Pub. L. 111-203]? No

Is this ICR related to the American Recovery and Reinvestment Act of 2009 (ARRA)? No

Is this ICR related to the Pandemic Response? No

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Common Form ICR:  No

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On behalf of this Federal agency, I certify that the collection of information encompassed by this request complies with 5 CFR 1320.9 and the related provisions of 5 CFR 1320.8(b)(3).

The following is a summary of the topics, regarding the proposed collection of information, that the certification covers:

(a) It is necessary for the proper performance of agency functions;

(b) It avoids unnecessary duplication;

(c) It reduces burden on small entities;

(d) It uses plain, coherent, and unambiguous language that is understandable to respondents;

(e) Its implementation will be consistent and compatible with current reporting and recordkeeping practices;

(f) It indicates the retention periods for recordkeeping requirements;

(g) It informs respondents of the information called for under 5 CFR 1320.8 (b)(3) about:

(i) Why the information is being collected;

(ii) Use of information;

(iii) Burden estimate;

(iv) Nature of response (voluntary, required for a benefit, or mandatory);

(v) Nature and extent of confidentiality; and

(vi) Need to display currently valid OMB control number;

(h) It was developed by an office that has planned and allocated resources for the efficient and effective management and use of the information to be collected.

(i) It uses effective and efficient statistical survey methodology (if applicable); and

(j) It makes appropriate use of information technology.

If you are unable to certify compliance with any of these provisions, identify the item by leaving the box unchecked and explain the reason in the Supporting Statement.

Certification Date: 02/10/2026

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