Effective Communication in Public Health Emergencies – Developing Community-Centered Tools for People with Special Health Care Needs

OMB 0920-1225

Children and youth with special health care needs and individuals with autism spectrum disorders have unique disaster communication needs, and often rely on health care and other professional providers for information during emergencies. The proposed study will conduct surveys, interviews and focus groups with families as well as provider communities and emergency response agencies, to identify the disaster communication needs of families with children and youth with special health care needs (CYSHCN) and families and individuals with autism spectrum disorders (ASD). Results will be used to develop communication tools, protocols and messages that can be used to improve the outcomes of these families after disasters.

The latest form for Effective Communication in Public Health Emergencies – Developing Community-Centered Tools for People with Special Health Care Needs expires 2021-04-30 and can be found here.

Latest Forms, Documents, and Supporting Material

Document Name
Provider - Evaluation Focus Group Form and Instruction
Health IT Professional - Focus Group Form and Instruction
Emergency Response Organization - Focus Group Form and Instruction
Provider Focus Group - ASD Form and Instruction
Provider Focus Group - CYSHCN Form and Instruction
Family/Caregiver Focus Group - CYSHCN and ASD Form and Instruction
Family/Caregiver Interview - ASD Form and Instruction
Family/Caregiver Interview - CYSHCN Form and Instruction
Provider Study - ASD Form and Instruction
Provider Survey - CYSHCN Form and Instruction
Family/Caregiver - ASD Form and Instruction
Family/Caregiver Survey - CYSHCN Form and Instruction
Attachment Z. Recruitment Email for Message Testing.docx Supplementary Document
Attachment Y. Recruitment Email for Provider Focus Groups.docx Supplementary Document
Attachment X. Recruitment Email for Families_Caregivers Interviews.docx Supplementary Document
Attachment W. Study Fact Sheet for Families_Caregivers.docx Supplementary Document
Attachment V. Pre-Interview Survey.docx Supplementary Document
Attachment I. Drexel IRB Approval Letter.pdf Supplementary Document
Attachment G. Assent Form.docx Supplementary Document
Attachment F. 502 Consent Document for Qualitiative Tools.docx Supplementary Document
Attachment E. Consent and Recruitment Email for ASD Patient and Provider Survey.docx Supplementary Document
Attachment D. Consent and Recruitment Email for CYSHCN Provider Survey.docx Supplementary Document
Attachment C. Consent and Recruitment Email for CYSHCN Families_Caregivers Survey.docx Supplementary Document
AttCe-CDC Response to Public Comment 2.docx Supplementary Document
AttCd-CDC Response to Public Comment 1.docx Supplementary Document
AttCb-PublicComment2.pdf Supplementary Document
AttCa-PublicComment1.txt Supplementary Document
Attachment B. Published 60 Day FRN CDC-2017-0071-0001.pdf Supplementary Document
Attachment A. Authorizing Legislation.docx Supplementary Document
EffectiveCommSSBv2.docx Supporting Statement B
EffectiveComm-SSA 19APR2018.docx Supporting Statement A
Provider - Evaluation Focus Group Form and Instruction
Health IT Professional - Focus Group Form and Instruction
Emergency Response Organization - Focus Group Form and Instruction
Provider Focus Group - ASD Form and Instruction
Provider Focus Group - CYSHCN Form and Instruction
Family/Caregiver Focus Group - CYSHCN and ASD Form and Instruction
Family/Caregiver Interview - ASD Form and Instruction
Family/Caregiver Interview - CYSHCN Form and Instruction
Provider Study - ASD Form and Instruction
Provider Survey - CYSHCN Form and Instruction
Family/Caregiver - ASD Form and Instruction
Family/Caregiver Survey - CYSHCN Form and Instruction

All Historical Document Collections

201801-0920-006

Approved with change

New collection (Request for a new OMB Control Number)

2018-03-02

OMB Details

Family/Caregiver Survey - CYSHCN

Federal Enterprise Architecture: Disaster Management - Disaster Preparedness and Planning

Form NA

CYSHCN Family/Caregiver Survey

Form and instruction

Review document collections for all forms, instructions, and supporting documents - including paper/printable forms.