Alzheimer's Disease Supportive Services Program (ADSSP) Data Collection

The Alzheimer’s and Dementia Program Data Reporting Tool (ADP-DRT) is needed in order to: •Collect data for performance measures used in the justification of the budget to Congress and by program, state and national decision makers. •Effectively manage the ACL’s Alzheimer’s Disease Program at the federal, state and local levels. •Advocate at the federal and state levels for more effective and efficient supports and services for persons with Alzheimer’s disease and their caregivers. The ADP-DRT collects information about the delivery of supports and services by the Administration for Community Living (ACL) Alzheimer’s Disease Program grantees, including basic demographic information about service recipients and spending on direct services and administrative expenses. The Older American’s Act requires ACL to evaluate “demonstration projects that support the objectives of this Act, including activities to bring effective demonstration projects to scale with a prioritization of projects that address the needs of under served populations, and promote partnerships among aging services, community-based organizations, and Medicare and Medicaid providers, plans, and health (including public health) systems. (Section 201 (42 U.S.C. 3011) Sec. 127. Research and Evaluation). To fulfill the evaluation requirements and allow for optimal federal and state-level management of the program, specific information must be collected from grantees, including the following: A. The number of persons with Alzheimer’s disease or related dementia or at high risk of dementia and/or their caregivers served by the program and their respective demographic characteristics. B. The number of professionals trained in dementia education, care and best practices. C. Information about grant funds spent on direct services, program administration costs and general organizational administrative costs. D. The provision of direct services to persons with Alzheimer’s disease or related dementia or at high risk of dementia and/or their caregivers. Information from the ADP-DRT will be provided to: federal and state legislators; state agencies on aging; national, state and local organizations with an interest in Alzheimer’s disease and related dementia and long-term care issues; current and future ACL Alzheimer’s Disease Program grantees; and private citizens who request it. Information will be posted on ACL’s National Alzheimer’s and Dementia Resource Center (NADRC) website.

The latest form for Alzheimer's Disease Supportive Services Program (ADSSP) Data Collection expires 2023-12-31 and can be found here.