Chronic Disease Self-Management Education Program

The Administration on Aging (AoA), part of the Administration for Community Living (ACL), will use the proposed set of data collection tools to monitor grantees receiving “Empowering Older Adults and Adults with Disabilities through Chronic Disease Self-Management Education (CDSME)” cooperative agreements. Most recently, through funding provided by 2019 Prevention and Public Health Funds, ACL awarded 11 cooperative agreements for a three-year project period beginning May 1, 2019. Grantee agencies represent a variety of organization types, including state agencies (aging and public health), area agencies on aging, universities, and nonprofit organizations. Grantees are tasked with two primary goals: (1) significantly increase the number of older adults and adults with disabilities who participate in CDSME and self-management support programs and (2) develop a sustainable infrastructure for these proven interventions. The most widely disseminated CDSME is the Chronic Disease Self-Management Program (CDSMP), originally developed at Stanford University. In addition to the English version of the CDSMP, which is appropriate for any type of chronic condition, other evidence-based self-management education programs have been developed for individuals with diabetes, chronic pain, or HIV, those with cancer or cancer survivors, for Spanish-speaking individuals, and in an internet format. Additionally, self-management support programs spanning topics such as behavioral health, physical activity, and medication management are supported through this funding initiative. Grantees collect information at both the workshop and participant level. Specific to the workshop, information on workshop type, location, start/end date, etc. is collected. At the participant level, de-identified demographic and health status information is collected. AoA funds the National Council on Aging (NCOA) to serve as the National CDSME Resource Center and provide technical assistance (TA) to grantees as well as the broader network of organizations implementing CDSME and self-management support programs. NCOA created an online database that grantees and other program sites use to provide data on their workshops. This system allows AoA to regularly monitor grantee performance status, including data analysis, maps, comparative charts, and identification of high- and low-performing grantees in order to identify and target technical assistance needs. AoA will use this set of data collection tools to monitor 29 grantees that were awarded cooperative agreements in response to the “Empowering Older Adults and Adults with Disabilities through Chronic Disease Self-Management Education Programs” funding opportunities competed in 2017, 2018, and 2019. These data collection tools will also be used for future CDSME cooperative agreements. AoA will use the information to: 1) comply with reporting requirements mandated by the authorizing statutes; 2) collect data for performance measures used in the justification of the budget to Congress and by program, state, and national decision makers; 3) effectively manage the CDSME program at the federal, state, and local levels; 4) identify program implementation issues and technical assistance needs; 5) identify best practices to serve as the basis for developing resources to help grantees learn from and replicate these practices; and 6) provide information for reports to Congress, other government agencies, stakeholders, and to the public about grantee progress. Data will be collected from grantee staff and program staff/volunteers involved in delivering CDSME workshops, as well as individuals who participate in CDSME workshops

The latest form for Chronic Disease Self-Management Education Program expires 2022-11-30 and can be found here.

Chronic Disease Self-Management Education Program

Federal Enterprise Architecture: Community and Social Services - Social Services

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