ATTACHMENT 17
Baseline and Follow-Up Survey to Determine Awareness Levels and Communications Preferences of Advocates Regarding Colorectal Cancer Clnical Trials
______________________________________________________________________________
OMB #0925-0046-18a
Exp. Date: 10/31/2006
National Cancer Institute
Clinical Trials Awareness Survey with Advocacy Group Members/ Constituents
The National Cancer Institute (NCI) is working with the Colon Cancer Alliance (CCA) and C3: Colorectal Cancer Coalition to raise awareness about colorectal cancer clinical trials. As part of this effort, we are conducting this survey with advocacy group members and constituents to determine their current level of clinical trials knowledge and awareness. We will be conducting a follow-up survey in approximately one year to see if awareness levels have changed. To this end, please provide us with your e-mail address below so that we may send you this brief follow-up survey.
This survey should take approximately 5 minutes to complete, and your participation in this survey is completely voluntary. Your responses will be kept confidential and will not be disclosed to anyone outside NCI or its contractor, NOVA Research Company, except as otherwise required by law. Data will be provided to the NCI in aggregate form only, with any potentially identifying information removed. You may skip any questions that you prefer not to answer.
Thank you for taking the time to complete this survey.
What is your e-mail address?
With respect to your involvement with C3 or CCA, how would you primarily describe yourself?
Cancer patient, please specify:
Recently diagnosed and have not decided on treatment
In treatment
Completed treatment within the last year
Cancer survivor (1 year or more since treatment ended)
Caregiver/family member/friend of a cancer patient
Medical professional (please specify: _________________)
Other (please specify: _____________________________ )
How familiar are you with clinical trials?
Very familiar
Somewhat familiar
Not at all familiar
If you are very or somewhat familiar with clinical trials, what is your main source of information about clinical trials? (Check all that apply)
Medical professionals
Media
TV
Radio
Newspaper
Magazine
Internet
Materials from CCA or C3
Materials from the National Cancer Institute
Materials from other cancer organizations (please specify: __________________)
Other (please specify: ____________________)
Have you heard of any of these NCI colorectal cancer clinical trials? (Select all that apply)
Cetuximab and/or Bevacizumab Combined With Combination Chemotherapy in Treating Patients With Locally Advanced or Metastatic Colorectal Cancer (Study # C80405)
Oxaliplatin, Leucovorin, and Fluorouracil With or Without Bevacizumab in Treating Patients Who Have Undergone Surgery for Stage II Colon Cancer (Study # E5202)
Combination Chemotherapy With or Without Bevacizumab in Treating Patients Who Have Undergone Surgery for Stage II or Stage III Rectal Cancer (Study # E5204)
Radiation Therapy and Either Capecitabine or Fluorouracil With or Without Oxaliplatin Before Surgery in Treating Patients With Resectable Rectal Cancer (Study # NSABP-R-04)
For any of these trials that you have heard of, how did you hear about them?
National Cancer Institute, select all that apply:
Web site (www.cancer.gov)
1-800-4-CANCER
Other NCI resources
CCA or C3, select all that apply:
Web site
E-newsletter
Listserv announcement
Toll-free number
Meeting/special event
Patient education materials
Other (please specify: _________________________)
Other cancer organization (Specify organization:_________________________), select all that apply:
Web site
E-newsletter
Listserv announcement
Toll-free number
Meeting/special event
Patient education materials
Other (please specify: __________________________)
Don’t recall
Other (please specify: _________________________________)
After first hearing about these trials, what actions, if any, did you take to get more information about the trials? (Check all that apply)
Went to www.cancer.gov (e.g., PDQ, Clinical Trials Web page)
Called 1-800-4-CANCER
Called CCA Helpline
Called C3 Clinical Trials Matching line
Spoke to a health professional about one of these trials
Contacted a study coordinator at one of the trial sites
Other (please specify: ________________________________)
None
Please enter the following demographic information:
Gender:
Male
Female
Age:
Under 21
21-30
31 – 40
41 – 50
51 – 60
61 - 70
71 - 80
over 80
Zip code:
Ethnicity:
Hispanic or Latino
Not Hispanic or Latino
Race:
American Indian or Alaska Native
Asian
Black or African American
Native Hawaiian or Other Pacific Islander
White
Visit http://www.cancer.gov/clinicaltrials/developments/NCD179N if you would like more information on the trials listed in this survey. Thank you for your time. We may be following-up with you via e-mail in approximately one year. If you have any questions about this survey, please contact Dan Eckstein at 301-986-1891 or [email protected].
OMB #0925-0046-18b
Exp. Date: 10/31/2006
Follow-up Clinical Trials Awareness Survey with Advocacy Group Members/ Constituents
For the past year, the National Cancer Institute (NCI) has worked with the Colon Cancer Alliance (CCA) and C3: Colorectal Cancer Coalition to raise awareness about colorectal cancer clinical trials. As part of this effort, we are conducting this survey with advocacy group members and constituents to see if our promotional efforts to increase awareness have made an impact.
Your participation in this survey is completely voluntary. Please be assured that your responses will be kept confidential and will not be disclosed to anyone outside NCI or its contractor, NOVA Research Company, except as otherwise required by law. Data will be provided to the NCI in aggregate form only, with any potentially identifying information removed. You may skip any questions that you prefer not to answer. This survey should take approximately 4 minutes to complete.
Thank you for taking the time to complete this survey.
With respect to your involvement with C3 or CCA, how would you primarily describe yourself?
Cancer patient, please specify:
Recently diagnosed and have not decided on treatment
In treatment
Completed treatment within the last year
Cancer survivor (1 year or more since treatment ended)
Caregiver/family member/friend of a cancer patient
Medical professional (please specify: _________________)
Other (please specify: _____________________________)
How familiar are you with clinical trials?
Very familiar
Somewhat familiar
Not at all familiar
Have you heard of any of these NCI Colorectal Cancer clinical trials? (Select all that apply)
Cetuximab and/or Bevacizumab Combined With Combination Chemotherapy in Treating Patients With Locally Advanced or Metastatic Colorectal Cancer (Study # C80405)
Oxaliplatin, Leucovorin, and Fluorouracil With or Without Bevacizumab in Treating Patients Who Have Undergone Surgery for Stage II Colon Cancer (Study # E5202)
Combination Chemotherapy With or Without Bevacizumab in Treating Patients Who Have Undergone Surgery for Stage II or Stage III Rectal Cancer (Study # E5204)
Radiation Therapy and Either Capecitabine or Fluorouracil With or Without Oxaliplatin Before Surgery in Treating Patients With Resectable Rectal Cancer (Study # NSABP-R-04)
For any of these trials that you have heard of, how did you hear about them?
C3 promotions, select all that apply:
C3 Web site
Momentum newsletter
Listserv announcement
Clinical Trials Matching Service
C3 toll-free number
Meeting/special event
Patient education materials
Clinical trials e-newsletter
Clinical trials teleconference
Other C3 activity (please specify: _________________________)
CCA promotions, select all that apply:
CCA Web site
The Voice newsletter
Listserv announcement
Patient Support Helpline
Buddy Program
Meeting/special event
Other CCA activity (please specify: _________________________)
National Cancer Institute, select all that apply:
Web site (www.cancer.gov)
1-800-4-CANCER
Other NCI resources
Media, select all that apply:
TV
Radio
Newspaper
Magazine
Internet
Medical professionals
Materials from other cancer organizations
Other (please specify: _________________________)
After hearing about these trials, what actions, if any, did you take to get more information about the trials?
Went to www.cancer.gov (e.g., PDQ, Clinical Trials Web page)
Called 1-800-4-CANCER
Called CCA Helpline
Called C3 Clinical Trials Matching line
Spoke to a health professional about one of these trials
Contacted a study coordinator at one of the trial sites
Other (please specify: ________________________________)
None
Please enter the following demographic information:
Age:
Under 21
21-30
31 – 40
41 – 50
51 – 60
61 - 70
71 - 80
over 80
Zip code:
Visit http://www.cancer.gov/clinicaltrials/developments/NCD179N if you would like more information on the trials listed in this survey. Thank you for your time. If you have any questions about this survey, please contact Dan Eckstein at 301-986-1891 or [email protected].
File Type | application/msword |
File Title | CTWG survey with AG |
Author | User |
Last Modified By | goodmann |
File Modified | 2006-09-15 |
File Created | 2006-09-15 |