1 #2_Attach 1_Mod Guide Focus Group

OMB No. 0925-0046-02

Expiration Date 2/28/13

Attachment 1: NCI Cancer.gov Evolution User Research

Focus Groups with Patients, Families, and Friends

Moderator’s Guide

Public reporting burden for this collection of information is estimated to average 90 minutes per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to: NIH, Project Clearance Branch, 6705 Rockledge Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0046). Do not return the completed form to this address.

1. WELCOME (5 minutes)

Welcome everyone. My name is [MODERATOR NAME], and I work for AED, a nonprofit organization working on a research project for the National Cancer Institute, or NCI, to help make improvements to their Web site: Cancer.gov. We are talking to cancer patients and survivors as well as their family members and friends to gather input from potential users of NCI’s Web site during this process. Thank you for coming to this discussion.

Before we begin, I’d like to explain a few things about this room and how the discussion will work.

1. We are not trying to sell or promote any product or service to you.
   
   

2. There are no right or wrong answers -- We want to know your honest opinions.

3. Don’t feel like you need to answer every question. But if I haven’t heard from you in awhile I may call on you occasionally.
   
   

4. There are microphones in this room that we are using to audiotape the discussion. Afterwards, I have to write a report and by having the tapes it will help me to do this.
   

5. Your feedback will be kept confidential. The findings will be reported to the NCI in a summary form and no names or other identifying information will be used.

6. Because we are taping, it is important that you try to speak one at a time. I may occasionally interrupt you when two or more people are talking at once in order to be sure everyone gets a chance to talk and that responses are accurately recorded.
   
   

7. Behind me is a one-way mirror. Some of the people working on this project are observing this discussion so that they can hear your opinions directly from you. However, your identity and anything you personally say here will remain confidential. When I write my report, I will not refer to anyone by name.
   
   

8. The group will last for one hour and thirty minutes. I want to be sure not to keep you here any longer, so I may occasionally interrupt the discussion to move us along.
   
   

9. Please turn off your beepers & cell phones. Should you need to go to the restroom during the discussion, please feel free to leave, but we’d appreciate it if you would go one at a time.

10. I do not work for the people who are sponsoring this research, and I was not personally involved in the development of any of the ideas and items that I am going to share with you today. If you have something negative to say, it is all right. Remember, there are no right or wrong answers. We just want to hear your opinions.

Do you have any questions before we get started?

2. INTRODUCTIONS (5 minutes)

1. Let’s go around the table and introduce ourselves to each other including:

• your first name;

• where you’re from; and

• whether you are a cancer patient, survivor, or a friend or family member.
  
  

3. GENERAL DISCUSSION OF CANCER.GOV (15 minutes)

To begin the discussion, I would like to hear about your experiences and expectations looking online for cancer information.

1. As a cancer patient/survivor/family member/friend, what cancer related information and resources have you searched for online?

   1. How did you look for the information that you wanted? What Web sites did you visit? What search terms did you use?

   2. How well did the information and resources that you were able to access online meet your needs? For what reasons?

2. Have any of you been to the NCI Web site, Cancer.gov? [If some say ‘yes,’ ask:]

   1. Why did you visit Cancer.gov? What were you looking for?

   2. What was your impression of the site? Did you find the information you wanted?

   3. Would you visit the site again or recommend it to a friend? Why or why not?

NOTE: People may say yes without really having gone – it is important to judge the tenor and specificity of the comments about the Cancer.gov site when they “last went there.”

3. What do you expect Cancer.gov (or for those of you who have not visited that site, the website of the National Cancer Institute of NIH) to offer to cancer patients, survivors, and their friends and family?

   1. What information and resources do you think the site provides or should provide?

   2. How much would you trust information found on NCI’s Web site?

4. FEEDBACK ON CANCER.GOV CONCEPTS (60 minutes)

Now I am going to show you [a number] of Web site concepts or ideas that NCI is developing for Cancer.gov. They plan to develop a section of the Web site specifically for cancer patients, survivors, and their family and friends. These are the concepts that I am going to share with you for your feedback. We are going to look at each concept together one-by-one.

1. [DISTRIBUTE CONCEPT 1 TO PARTICIPANTS. PUT CONCEPT 1 ON THE PROJECTION SCREEN.] Take a few minutes to review these Web materials. Consider the overall look and feel, as well as the examples of the type of content that would be offered in this version of the Cancer.gov Web site.

   1. What does this concept communicate to viewers about NCI and Cancer.gov? How does it make you feel?

   2. How appealing is the layout or overall design of this concept? What do you like/dislike about it?

   3. How do you feel about the colors and graphics? What do you like/dislike about them?

   4. How do you feel about the images and graphic used in this concept? Are they helpful? Why/Why not? What other images would be more useful?

   5. What do you think about the headlines and text? Is it easy or difficult to read?

   6. What is your opinion of the tools and resources presented in this concept? Which seem the most useful for users of the Cancer.gov Web site? For what reasons?

   7. How do you feel about the content in this concept? How useful are the ideas presented here to cancer patients/survivors and their family and friends?

   8. What is the most memorable part of this concept? What should NCI definitely include in the development of this new section of Cancer.gov?

[REPEAT QIV.1a-h FOR EACH CONCEPT BEING TESTED WITH THIS AUDIENCE. ROTATE THE ORDER OF CONCEPTS PRESENTED BETWEEN GROUPS.]

2. Now that you’ve seen all of these concepts for the Cancer.gov Web site designed for cancer patients, survivors, and their family and friends, I am interested in hearing about your overall favorite concepts and preferred elements. NCI can only develop one of these concepts into an actual Web site so they need your advice.

1. Which concept do you think is the most appealing? What about this particular one is most engaging?

2. What could be changed to make it better?

3. Which of these is the worst? Why? What, specifically, do you dislike about it?

2. Consider the various ways of presenting and types of information, resources, and tools that are depicted in these concepts.

   1. Which one catches your attention the most? What seems the most useful?

   2. Which of these elements should NCI definitely include as part of the future Cancer.gov Web site?

   3. What items are least appealing to you?

2. Thinking about all of the materials that you have reviewed, was there something missing? What, if any, information, resources, or ideas are important to cancer patients, survivors, and friends and family but that you do not see in any of these?

   1. Why do you think NCI should include this content?

   2. How would you suggest incorporating it into the Cancer.gov site?

5. CONCLUSION (5 minutes)

1. Before we conclude, is there anything else you would like to share, or do you have any questions for me?

2. Thank you for sharing your opinions and feedback on the Web site concepts we have shared with you today. We will be using your input to develop and refine final concepts and content for the NCI’s Cancer.gov site.
   
   

THANK YOU!

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