ATTACH 2_Data collection methods_9-22

ATTACHMENT 2 – Data Collection Methods Used in Previous Studies

DATA COLLECTION SUB-STUDIES USED IN:

OMB No. 0925-0046 (2007-2010) AND OMB No. 0925-0526 (2003-2006)

OMB No. 0925-0046 (2007-2010)

Date Submitted to NCI PRA Liaison for Approval	I.D. No.	Instrument Description	Type of Respondent	Method
3/5/07	1	Survey to Assess Breast Cancer Patients and Survivors Preferences of a Web-Based Clinical Trials Tool	Breast cancer patients and survivors	Interview
4/16/07	2	Web-based Survey for Users of NCI’s PDQ Adult Cancer Information Treatment Summaries	Users of NCI’s PDQ Adult Treatment Summaries	Survey
4/27/2007	3	Evaluation of NCI’s Office of Women’s Health (OWH) Website	Users of NCI’s OWH Website	Survey
5/4/2007	4	Web-based Survey to Understand Communication and Education Needs of NCI’s Office of Communication and Education (OCE) External Stakeholders	Organizations who use cancer communication/education	Survey
5/29/2007	5	NCI’s Center for Cancer Research (CCR) Survey to Assess Health Care Professionals’ Awareness and Promotional Preferences of NCI Intramural Clinical Trials	Health care providers	Survey
8/10/2007	6	Online Survey of Subscribers to the NCI Cancer Bulletin	Subscribers to NCI Cancer Bulletin	Survey
10/29/2007	7	Survey to Assess Organizational Use and Dissemination of NCI Patient Education Resources	NCI/OCE partner organizations	Survey
12/28/2007	8	Formative Research to Determine Best Practices for Incorporating Advocacy Involvement in NCI Programs	Advocates	Survey
5/14/2008 (Original submission 4/4/08, required revision per OMB review)	9 (Received OMB approval 7/21/08)	Web-based Survey to Communicate Cancer Risk Estimates	General public	Survey
5/29/08	10 (OMB did not approve, withdrawn on 7/7/08)	Web-Based Survey to Understand Public Perceptions of Genetic Testing	General public	Survey
10/2/08	11	Focus Groups to Assess Consumers' Perceptions of Direct-to-Consumer Genetic Testing	General public	Focus groups
11/14/08	12	Survey to Assess Public Understanding of Risk Estimates through Visual Displays – UPDATED in #14 BELOW	General public	Survey and Interviews
12/17/08	13	Survey of Human Biospecimen Needs and Challenges for the Biomedical Research Enterprise	Health professionals	Survey
2/4/08	14	Survey to Assess Public Understanding of Risk Estimates through Visual Displays – ADDENDUM	General public	Survey and Interviews
6/5/09	15	Online Focus Groups to Inform the Development of a National Biorepository	Researchers	Focus groups
7/10/09	16	An Assessment of Rural and Uninsured Consumer Perspectives on Cancer and Related Communications: A Focus Group Study (This study is still under review.)	General public	Focus groups

OMB No. 0925-0526 (2003-2006)

I.D. No.	Instrument Description	Type of Respondent	Method
1	Mail Questionnaire to Determine Satisfaction of NCI Cancer Pain Products Among Practitioners	Health care providers	Survey
2	Questionnaire to Determine Satisfaction of NCI Cancer Pain Products Among Cancer Patients	Cancer Patients	Survey
3	Online Survey to Determine Satisfaction Levels Among Subscribers to the NCI Cancer Bulletin	NCI Cancer Bulletin readers	Survey
4	Survey to Determine Satisfaction with NCI’s “Ride-On” Program	NCI partner organizations	Survey
5	Evaluation to Determine Participant Satisfaction with the “Understanding NCI: Toll-Free Teleconference Series”	Advocacy groups, cancer survivors, public	Survey

Please note that dates were not included in the original version of this table, but all information collections occurred between 2003 and 2006.  

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