Form 1070 2014 825 NLM Clinical Trials

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Overview

Welcome and Thank You Text
Current Model Qsts
Current Custom Qsts
Custom Qsts (12-16-13)
Custom Qsts (1-9-13)
Custom Qsts (11-11-11)

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Sheet 1: Welcome and Thank You Text

Model Instance Name: NLM Clinical Trials
#REF!
MID:	#REF!
Date: 2-14-2011	2/14/2011
Welcome and Thank You Text
	Directions:
	This welcome text is shown at the top of the questionnaire window and the thank you text at the bottom. This is a good place to mention the site/company/agency name so the visitor knows whom they are taking the survey for. Feel free to modify the standard Welcome text shown in the box below.
					Examples
					Welcome Text Example
	Welcome Text
	Thank you for visiting our site. You've been randomly chosen to take part in a brief survey to let us know what we're doing well and where we can improve. Please take a few minutes to share your opinions, which are essential in helping us provide the best online experience possible.
					Thank You Text Example
	Thank You Text
	Thank you for taking our survey - and for helping us serve you better. Please note you will not receive a response from us based on your survey comments. If you would like us to contact you about your feedback, please visit the Contact Us section of our web site.

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Sheet 2: Current Model Qsts

Model Instance Name:
NLM Clinical Trials v2
MID:	hRlIhMU4IRp1NowpYUdwEw==
Date:	2/14/2011
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Model questions utilize the ACSI methodology to determine scores and impacts
	ELEMENTS (drivers of satisfaction)		CUSTOMER SATISFACTION		FUTURE BEHAVIORS
	Content (1=Poor, 10=Excellent, Don't Know)		Satisfaction		Return (1=Very Unlikely, 10=Very Likely)
1	Please rate the accuracy of information on ClinicalTrials.gov.	23	What is your overall satisfaction with ClinicalTrials.gov? (1=Very Dissatisfied, 10=Very Satisfied)	26	How likely are you to return to ClinicalTrials.gov?
2	Please rate the quality of information on ClinicalTrials.gov.	24	How well does this site meet your expectations? (1=Falls Short, 10=Exceeds)		Recommend (1=Very Unlikely, 10=Very Likely)
3	Please rate the freshness of content on ClinicalTrials.gov.	25	How does this site compare to your idea of an ideal website? (1=Not Very Close, 10=Very Close)	27	How likely are you to recommend this site to someone else?
	Look and Feel (1=Poor, 10=Excellent, Don't Know)				Primary Resource (1=Very Unlikely, 10=Very Likely)
4	Please rate the visual appeal of this site.				How likely are you to use ClinicalTrials.gov as your primary resource for clinical trials information?
5	Please rate the balance of graphics and text on this site.
6	Please rate the readability of the pages on this site.
	Navigation (1=Poor, 10=Excellent, Don't Know)
7	Please rate how well this site is organized.
8	Please rate the options available for navigating this site.
9	Please rate how well the ClinicalTrials.gov layout helps you find what you are looking for.
10	Please rate the number of clicks to get where you want on ClinicalTrials.gov.
	Site Performance (1=Poor, 10=Excellent, Don't Know)
11	Please rate how quickly pages load on this site.
12	Please rate the consistency of speed from page to page on ClinicalTrials.gov.
13	Please rate the ability to load pages without getting error messages on ClinicalTrials.gov.
	Search (1=Poor, 10=Excellent, Don't Know)
14	Please rate the relevance of search results on ClinicalTrials.gov.
15	Please rate the organization of search results on this site.
16	Please rate how well the search results help you decide what to select.
17	Please rate how well the search feature helps you to narrow the results to find what you want.

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Sheet 3: Current Custom Qsts

Model Instance Name:			red & strike-through: DELETE
NLM Clinical Trials v2			underlined & italicized: RE-ORDER
MID: hRlIhMU4IRp1NowpYUdwEw==			pink: ADDITION
Date:	3/1/2008		blue + -->: REWORDING
partitioned - yes
NLM Clinical Trials v2 CUSTOM QUESTION LIST
QID	Skip Logic Label	Question Text	Answer Choices (limited to 50 characters)	Skip to	Type (select from list)	Single or Multi	Required Y/N	Special Instructions	CQ Label
EDO09660		How did you first learn about ClinicalTrials.gov?	Search engine (e.g., Google, Yahoo)		Radio button, one-up vertical	Single	Y	Randomize	Awareness Source
			Someone recommended it
			Social media (e.g., Twitter, Facebook)					OPS Group
			Television or radio
			Medical journal article
			Newspaper, magazine, or press release
			Other government agency
			Other, please specify:	A
EDO09661	A	Other source			Text field, <100 char		N		Other Awareness Source
EDO09662		How frequently do you visit ClinicalTrials.gov?	First time		Radio button, one-up vertical	Single	Y		Frequency of Visit
			Daily
			Several times a week
			About once a week
			Several times a month
			About once a month
			Every few months
EDO09663		Which of the following best describes your role visiting ClinicalTrials.gov today?	Patient	A, G	Radio button, one-up vertical	S	Y	Skip Logic Group	Role
			Family or Friend of Patient	B, G
			Healthy Person	B, G
			Clinical Trial Staff	C, H
			Health Care Provider (e.g., nurse, physician, etc.)	D, H
			Scientist/Researcher	E, H
			Librarian or Information Professional	F, H
			Student/Educator	F, H
			Clinical Research Support (e.g. regulatory affairs)	F, H
			Medical Communications	F, H
			Institutional Review Board (IRB) or Ethics Committee Member	F, H
			Other, please specify:	I,F,H
EDO09664	I	What best describes your role?			Text area, no char limit		N	Skip Logic Group	Other role
EDO09665	A	Which of the following best describes the reason you are visiting the site today?	Trying to learn more about a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Patient
			Interest in volunteering for a clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Other, please specify:	J,G
EDO09666	J	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Patient Visit
EDO09667	B	Which of the following best describes the reason you are visiting the site today?	Concerned about family member or friend with a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Healthy person
			Interest in volunteering for a clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Other, please specify:	K
EDO09668	K	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Healthy Person Visit
EDO09669	C	Which of the following best describes the reason you are visiting the site today?	Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Clinical Trial Staff
			Interest in a particular clinical trial
			Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)
			Trying to learn more about experimental interventions for a disease or condition
			Other, please specify:	L
EDO09670	L	What best describes your reason for visit?			Text area, no char limit			Skip Logic Group	Other Clinical Trials Staff
EDO09671	D	Which of the following best describes the reason you are visiting the site today?	Trying to find a clinical trial for a patient with a specific disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Health Care Provider
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions for a disease or condition
			Other, please specify:	M
EDO09672	M	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Health Care Provider
EDO09673	E	Which of the following best describes the reason you are visiting the site today?	Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)		Radio button, one-up vertical	S	Y		Visit Reason-Scientist
			Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions for a disease or condition
			Identify unpublished trials
			Other, please specify:	N
EDO09674	N	What best describes your reason for visit?			Text area, no char limit			Skip Logic Group	Other Scientist/Researcher
EDO09675	F	Which of the following best describes the reason you are visiting the site today?	Trying to learn more about a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Other/Generic
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)
			Trying to learn about clinical research
			Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)
			Interest in a particular clinical trial
			Other, please specify:	O
EDO09676	O	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other
EDO09677	G	What do you plan to do with the information you are looking for on ClinicalTrials.gov? (select all that apply)	Contact trials that I found		Checkbox, one-up vertical	M	Y	Skip Logic Group	Infornmation Use-Patient
			Discuss with family or friends					Randomize
			Discuss with a doctor or other health care provider
			Seek more information on a disease, condition, diagnosis, or treatment
			Give information to family member or friend
			Look for trials in other registries
			Didn't find what I wanted
			Not sure yet
			Explore what you have to offer (just browsing)
			Other, please specify:	P
EDO09678	P	What do you plan to do with the information you are looking for?			Text area, no char limit		N	Skip Logic Group	Other-Information Use Patient
EDO09679	H	What do you plan to do with the information you are looking for on ClinicalTrials.gov? (select all that apply)	Refer a patient to clinical trial		Checkbox, one-up vertical			Skip Logic Group	Information Use-Non-Patient
			Use information for a project or presentation
			Improve my understanding of clinical research					Randomize
			Support new or current research projects
			Explore or support business opportunities in the field of biomedical research
			Seek further information from other websites
			Seek further information from ClinicalTrials.gov
			Include in systematic review
			Compare information with published trial results
			Didn't find what I wanted
			Not sure yet
			Other, please specify:	Q
EDO09680	Q	What do you plan to do with the information you are looking for?			Text area, no char limit		N	Skip Logic Group	Other-Information Use Non-Patient
EDO09681		Were you able to find what you were looking for?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Find Information
			No	B
			I was not looking for anything in particular/Just browsing
EDO09682	A	Did the information you found meet your needs?	Yes		Radio button, one-up vertical			Skip Logic Group	Info Met Needs
			No, please specify	C
EDO09683	B	What specifically were you looking for that you did not find?			Text area, no char limit		N	Skip Logic Group	Information Seeking
EDO09684	C	Describe why the information did not meet your needs.			Text area, no char limit		N	Skip Logic Group	Info Did Not Meet Needs
EDO09685		If you used the search feature of this site today to find your information, what method did you use?	Search Box (type in key words)		Checkbox, one-up vertical	M	Y	OPS Group	Search Experience
			Basic Search (including the search box at the top right-hand corner of each page)					Randomize
			Advanced Search (searching within specific fields, such as disease, location, treatment, sponsor)
			Studies by Topic (browse by condition, drug intervention, sponsor)
			Studies by Map
			I did not use the search feature today
			Other, please specify:	A
EDO09686	A	Other Search Experience			Text field, <100 char		N		Other Search Experience
EDO09687		Please describe your experience with the navigation process on this site:	I did not encounter any difficulties		Checkbox, one-up vertical	M	Y	OPS Group
			Could not navigate back to previous information
			Would often feel lost, not know where I was					Randomize
			Too many links or navigational choices
			Links did not take me where I expected
			Had technical difficulties (e.g. broken links, error messages)
			Links/labels are difficult to understand
			I used the search feature
			Other, please specify:	A
EDO09688	A	Other Navigation Experience			Text field, <100 char		N		Other Navigation Experience
EDO09689		Did you look at any summary results data tables on ClinicalTrials.gov today?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Data Table Results
			No
			I did not know that ClinicalTrials.gov includes studies with summary results information
EDO09690	A	Did you find the summary results data tables useful?	Yes		Radio button, one-up vertical	S	Y	Skip Logic Group	Data Table Results Useful
			No, please specify:	B
EDO09691	B	Why did you not find the results useful?			Text area, no char limit		N	Skip Logic Group	Data Table Results Not Useful
EDO09692	C	Have you looked for the results of a clinical trial in the past week?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Clinical Trials Past Week
			No
EDO09693	A	Where did you look for information about the results of a clinical trial?	MEDLINE/PubMed		Checkbox, one-up vertical	S	Y	Skip Logic Group	Clinical Trial Sources
			ClinicalTrials.gov summary results data tables
			Medical journal article
			Newspaper, magazine, or press release
			Other, please specify	B
EDO09694	B	Where did you look for clinical trial results?			Text area, no char limit		N	Skip Logic Group	Other Clinical Trial Sources
EDO09695		Please suggest one improvement you would like to see on ClinicalTrials.gov:			Text area, no char limit		N		Improvements

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Sheet 4: Custom Qsts (12-16-13)

Model Instance Name:			red & strike-through: DELETE
NLM Clinical Trials v2			underlined & italicized: RE-ORDER
MID: hRlIhMU4IRp1NowpYUdwEw==			pink: ADDITION
Date:	3/1/2008		blue + -->: REWORDING
partitioned - yes
NLM Clinical Trials v2 CUSTOM QUESTION LIST
QID	Skip Logic Label	Question Text	Answer Choices (limited to 50 characters)	Skip to	Type (select from list)	Single or Multi	Required Y/N	Special Instructions	CQ Label
EDO09660		How did you first learn about ClinicalTrials.gov?	Search engine (e.g., Google, Yahoo)		Radio button, one-up vertical	Single	Y	Randomize	Awareness Source
			Someone recommended it
			Social media (e.g., Twitter, Facebook)					OPS Group
			Television or radio
			Medical journal article
			Newspaper, magazine, or press release
			Other government agency
			Other, please specify:	A
EDO09661	A	Other source			Text field, <100 char		N		Other Awareness Source
EDO09662		How frequently do you visit ClinicalTrials.gov?	First time		Radio button, one-up vertical	Single	Y	Skip Logic Group	Frequency of Visit
			Daily	A, B
			Several times a week	A, B
			About once a week	A, B
			Several times a month	A, B
			About once a month	A, B
			Every few months	A, B
ACQhar0020676	A	Please select the statement which best describes your experience with the new ClinicalTrials.gov site redesign:	It is easier to find what I am looking for		Radio button, one-up vertical	Single	Y	Skip Logic Group	Redesign Experience
			It is harder to find what I am looking for	C
			My experience is no different when looking for information on the new site
			Don’t Know
ACQhar0020660	C	Please specify why it is harder to find what you are looking for.			Text area, no char limit		N	Skip Logic Group	Hard to Find Expereince
ACQhar0020659	B	Please tell us what you think of the redesigned ClinicalTrials.gov site.			Text area, no char limit		N	Skip Logic Group	Redesign Comments
EDO09663		Which of the following best describes your role visiting ClinicalTrials.gov today?	Patient	A, G	Radio button, one-up vertical	S	Y	Skip Logic Group	Role
			Family or Friend of Patient	B, G
			Healthy Person	B, G
			Clinical Trial Staff	C, H
			Health Care Provider (e.g., nurse, physician, etc.)	D, H
			Scientist/Researcher	E, H
			Librarian or Information Professional	F, H
			Student/Educator	F, H
			Clinical Research Support (e.g. regulatory affairs)	F, H
			Medical Communications	F, H
			Institutional Review Board (IRB) or Ethics Committee Member	F, H
			Other, please specify:	I,F,H
EDO09664	I	What best describes your role?			Text area, no char limit		N	Skip Logic Group	Other role
EDO09665	A	Which of the following best describes the reason you are visiting the site today?	Trying to learn more about a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Patient
			Interest in volunteering for a clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Other, please specify:	J,G
EDO09666	J	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Patient Visit
EDO09667	B	Which of the following best describes the reason you are visiting the site today?	Concerned about family member or friend with a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Healthy person
			Interest in volunteering for a clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Other, please specify:	K
EDO09668	K	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Healthy Person Visit
EDO09669	C	Which of the following best describes the reason you are visiting the site today?	Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Clinical Trial Staff
			Interest in a particular clinical trial
			Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)
			Trying to learn more about experimental interventions for a disease or condition
			Other, please specify:	L
EDO09670	L	What best describes your reason for visit?			Text area, no char limit			Skip Logic Group	Other Clinical Trials Staff
EDO09671	D	Which of the following best describes the reason you are visiting the site today?	Trying to find a clinical trial for a patient with a specific disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Health Care Provider
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions for a disease or condition
			Other, please specify:	M
EDO09672	M	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Health Care Provider
EDO09673	E	Which of the following best describes the reason you are visiting the site today?	Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)		Radio button, one-up vertical	S	Y		Visit Reason-Scientist
			Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions for a disease or condition
			Identify unpublished trials
			Other, please specify:	N
EDO09674	N	What best describes your reason for visit?			Text area, no char limit			Skip Logic Group	Other Scientist/Researcher
EDO09675	F	Which of the following best describes the reason you are visiting the site today?	Trying to learn more about a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Other/Generic
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)
			Trying to learn about clinical research
			Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)
			Interest in a particular clinical trial
			Other, please specify:	O
EDO09676	O	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other
EDO09677	G	What do you plan to do with the information you are looking for on ClinicalTrials.gov? (select all that apply)	Contact trials that I found		Checkbox, one-up vertical	M	Y	Skip Logic Group	Infornmation Use-Patient
			Discuss with family or friends					Randomize
			Discuss with a doctor or other health care provider
			Seek more information on a disease, condition, diagnosis, or treatment
			Give information to family member or friend
			Look for trials in other registries
			Didn't find what I wanted
			Not sure yet
			Explore what you have to offer (just browsing)
			Other, please specify:	P
EDO09678	P	What do you plan to do with the information you are looking for?			Text area, no char limit		N	Skip Logic Group	Other-Information Use Patient
EDO09679	H	What do you plan to do with the information you are looking for on ClinicalTrials.gov? (select all that apply)	Refer a patient to clinical trial		Checkbox, one-up vertical			Skip Logic Group	Information Use-Non-Patient
			Use information for a project or presentation
			Improve my understanding of clinical research					Randomize
			Support new or current research projects
			Explore or support business opportunities in the field of biomedical research
			Seek further information from other websites
			Seek further information from ClinicalTrials.gov
			Include in systematic review
			Compare information with published trial results
			Didn't find what I wanted
			Not sure yet
			Other, please specify:	Q
EDO09680	Q	What do you plan to do with the information you are looking for?			Text area, no char limit		N	Skip Logic Group	Other-Information Use Non-Patient
EDO09681		Were you able to find what you were looking for?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Find Information
			No	B
			I was not looking for anything in particular/Just browsing
EDO09682	A	Did the information you found meet your needs?	Yes		Radio button, one-up vertical			Skip Logic Group	Info Met Needs
			No, please specify	C
EDO09683	B	What specifically were you looking for that you did not find?			Text area, no char limit		N	Skip Logic Group	Information Seeking
EDO09684	C	Describe why the information did not meet your needs.			Text area, no char limit		N	Skip Logic Group	Info Did Not Meet Needs
EDO09685		If you used the search feature of this site today to find your information, what method did you use?	Search Box (type in key words)		Checkbox, one-up vertical	M	Y	OPS Group	Search Experience
			Basic Search (including the search box at the top right-hand corner of each page)					Randomize
			Advanced Search (searching within specific fields, such as disease, location, treatment, sponsor)
			Studies by Topic (browse by condition, drug intervention, sponsor)
			Studies by Map
			I did not use the search feature today
			Other, please specify:	A
EDO09686	A	Other Search Experience			Text field, <100 char		N		Other Search Experience
EDO09687		Please describe your experience with the navigation process on this site:	I did not encounter any difficulties		Checkbox, one-up vertical	M	Y	OPS Group
			Could not navigate back to previous information
			Would often feel lost, not know where I was					Randomize
			Too many links or navigational choices
			Links did not take me where I expected
			Had technical difficulties (e.g. broken links, error messages)
			Links/labels are difficult to understand
			I used the search feature
			Other, please specify:	A
EDO09688	A	Other Navigation Experience			Text field, <100 char		N		Other Navigation Experience
EDO09689		Did you look at any summary results data tables on ClinicalTrials.gov today?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Data Table Results
			No	B
			I did not know that ClinicalTrials.gov includes studies with summary results information
EDO09690	A	Did you find the summary results data tables useful?	Yes		Radio button, one-up vertical	S	Y	Skip Logic Group	Data Table Results Useful
			No, please specify:	B
EDO09691	B	Why did you not find the results useful?			Text area, no char limit		N	Skip Logic Group	Data Table Results Not Useful
EDO09692	C	Have you looked for the results of a clinical trial in the past week?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Clinical Trials Past Week
			No
EDO09693	A	Where did you look for information about the results of a clinical trial?	MEDLINE/PubMed		Checkbox, one-up vertical	S	Y	Skip Logic Group	Clinical Trial Sources
			ClinicalTrials.gov summary results data tables
			Medical journal article
			Newspaper, magazine, or press release
			Other, please specify	B
EDO09694	B	Where did you look for clinical trial results?			Text area, no char limit		N	Skip Logic Group	Other Clinical Trial Sources
EDO09695		Please suggest one improvement you would like to see on ClinicalTrials.gov:			Text area, no char limit		N		Improvements

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Sheet 5: Custom Qsts (1-9-13)

Model Instance Name:			red & strike-through: DELETE
NLM Clinical Trials v2			underlined & italicized: RE-ORDER
MID: hRlIhMU4IRp1NowpYUdwEw==			pink: ADDITION
Date:	3/1/2008		blue + -->: REWORDING
partitioned - yes
NLM Clinical Trials v2 CUSTOM QUESTION LIST
QID	Skip Logic Label	Question Text	Answer Choices (limited to 50 characters)	Skip to	Type (select from list)	Single or Multi	Required Y/N	Special Instructions	CQ Label
EDO09660		How did you first learn about ClinicalTrials.gov?	Search engine (e.g., Google, Yahoo)		Radio button, one-up vertical	Single	Y	Randomize	Awareness Source
			Someone recommended it
			Social media (e.g., Twitter, Facebook)					OPS Group
			Television or radio
			Medical journal article
			Newspaper, magazine, or press release
			Other government agency
			Other, please specify:	A
EDO09661	A	Other source			Text field, <100 char		N		Other Awareness Source
EDO09662		How frequently do you visit ClinicalTrials.gov?	First time		Radio button, one-up vertical	Single	Y	Skip Logic Group	Frequency of Visit
			Daily	A, B
			Several times a week	A, B
			About once a week	A, B
			Several times a month	A, B
			About once a month	A, B
			Every few months	A, B
	A	Please select the statement which best describes your experience with the new ClinicalTrials.gov site redesign:	It is easier to find what I am looking for		Radio button, one-up vertical	Single	Y	Skip Logic Group	Redesign Experience
			It is harder to find what I am looking for	C
			My experience is no different when looking for information on the new site
			Don’t Know
	C	Please specify why it is harder to find what you are looking for.			Text area, no char limit		N	Skip Logic Group	Hard to Find Expereince
	B	Please tell us what you think of the redesigned ClinicalTrials.gov site.			Text area, no char limit		N	Skip Logic Group	Redesign Comments
EDO09663		Which of the following best describes your role visiting ClinicalTrials.gov today?	Patient	A, G	Radio button, one-up vertical	S	Y	Skip Logic Group	Role
			Family or Friend of Patient	B, G
			Healthy Person	B, G
			Clinical Trial Staff	C, H
			Health Care Provider (e.g., nurse, physician, etc.)	D, H
			Scientist/Researcher	E, H
			Librarian or Information Professional	F, H
			Student/Educator	F, H
			Clinical Research Support (e.g. regulatory affairs)	F, H
			Medical Communications	F, H
			Institutional Review Board (IRB) or Ethics Committee Member	F, H
			Other, please specify:	I,F,H
EDO09664	I	What best describes your role?			Text area, no char limit		N	Skip Logic Group	Other role
EDO09665	A	Which of the following best describes the reason you are visiting the site today?	Trying to learn more about a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Patient
			Interest in volunteering for a clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Other, please specify:	J,G
EDO09666	J	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Patient Visit
EDO09667	B	Which of the following best describes the reason you are visiting the site today?	Concerned about family member or friend with a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Healthy person
			Interest in volunteering for a clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Other, please specify:	K
EDO09668	K	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Healthy Person Visit
EDO09669	C	Which of the following best describes the reason you are visiting the site today?	Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Clinical Trial Staff
			Interest in a particular clinical trial
			Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)
			Trying to learn more about experimental interventions for a disease or condition
			Other, please specify:	L
EDO09670	L	What best describes your reason for visit?			Text area, no char limit			Skip Logic Group	Other Clinical Trials Staff
EDO09671	D	Which of the following best describes the reason you are visiting the site today?	Trying to find a clinical trial for a patient with a specific disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Health Care Provider
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions for a disease or condition
			Other, please specify:	M
EDO09672	M	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Health Care Provider
EDO09673	E	Which of the following best describes the reason you are visiting the site today?	Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)		Radio button, one-up vertical	S	Y		Visit Reason-Scientist
			Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions for a disease or condition
			Identify unpublished trials
			Other, please specify:	N
EDO09674	N	What best describes your reason for visit?			Text area, no char limit			Skip Logic Group	Other Scientist/Researcher
EDO09675	F	Which of the following best describes the reason you are visiting the site today?	Trying to learn more about a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Other/Generic
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)
			Trying to learn about clinical research
			Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)
			Interest in a particular clinical trial
			Other, please specify:	O
EDO09676	O	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other
EDO09677	G	What do you plan to do with the information you are looking for on ClinicalTrials.gov? (select all that apply)	Contact trials that I found		Checkbox, one-up vertical	M	Y	Skip Logic Group	Infornmation Use-Patient
			Discuss with family or friends					Randomize
			Discuss with a doctor or other health care provider
			Seek more information on a disease, condition, diagnosis, or treatment
			Give information to family member or friend
			Look for trials in other registries
			Didn't find what I wanted
			Not sure yet
			Explore what you have to offer (just browsing)
			Other, please specify:	P
EDO09678	P	What do you plan to do with the information you are looking for?			Text area, no char limit		N	Skip Logic Group	Other-Information Use Patient
EDO09679	H	What do you plan to do with the information you are looking for on ClinicalTrials.gov? (select all that apply)	Refer a patient to clinical trial		Checkbox, one-up vertical			Skip Logic Group	Information Use-Non-Patient
			Use information for a project or presentation
			Improve my understanding of clinical research					Randomize
			Support new or current research projects
			Explore or support business opportunities in the field of biomedical research
			Seek further information from other websites
			Seek further information from ClinicalTrials.gov
			Include in systematic review
			Compare information with published trial results
			Didn't find what I wanted
			Not sure yet
			Other, please specify:	Q
EDO09680	Q	What do you plan to do with the information you are looking for?			Text area, no char limit		N	Skip Logic Group	Other-Information Use Non-Patient
EDO09681		Were you able to find what you were looking for?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Find Information
			No	B
			I was not looking for anything in particular/Just browsing
EDO09682	A	Did the information you found meet your needs?	Yes		Radio button, one-up vertical			Skip Logic Group	Info Met Needs
			No, please specify	C
EDO09683	B	What specifically were you looking for that you did not find?			Text area, no char limit		N	Skip Logic Group	Information Seeking
EDO09684	C	Describe why the information did not meet your needs.			Text area, no char limit		N	Skip Logic Group	Info Did Not Meet Needs
EDO09685		If you used the search feature of this site today to find your information, what method did you use?	Search Box (type in key words)		Checkbox, one-up vertical	M	Y	OPS Group	Search Experience
			Basic Search (including the search box at the top right-hand corner of each page)					Randomize
			Advanced Search (searching within specific fields, such as disease, location, treatment, sponsor)
			Studies by Topic (browse by condition, drug intervention, sponsor)
			Studies by Map
			I did not use the search feature today
			Other, please specify:	A
EDO09686	A	Other Search Experience			Text field, <100 char		N		Other Search Experience
EDO09687		Please describe your experience with the navigation process on this site:	I did not encounter any difficulties		Checkbox, one-up vertical	M	Y	OPS Group
			Could not navigate back to previous information
			Would often feel lost, not know where I was					Randomize
			Too many links or navigational choices
			Links did not take me where I expected
			Had technical difficulties (e.g. broken links, error messages)
			Links/labels are difficult to understand
			I used the search feature
			Other, please specify:	A
EDO09688	A	Other Navigation Experience			Text field, <100 char		N		Other Navigation Experience
EDO09689		Did you look at any summary results data tables on ClinicalTrials.gov today?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Data Table Results
			No	B
			I did not know that ClinicalTrials.gov includes studies with summary results information
EDO09690	A	Did you find the summary results data tables useful?	Yes		Radio button, one-up vertical	S	Y	Skip Logic Group	Data Table Results Useful
			No, please specify:	B
EDO09691	B	Why did you not find the results useful?			Text area, no char limit		N	Skip Logic Group	Data Table Results Not Useful
EDO09692	C	Have you looked for the results of a clinical trial in the past week?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Clinical Trials Past Week
			No
EDO09693	A	Where did you look for information about the results of a clinical trial?	MEDLINE/PubMed		Checkbox, one-up vertical	S	Y	Skip Logic Group	Clinical Trial Sources
			ClinicalTrials.gov summary results data tables
			Medical journal article
			Newspaper, magazine, or press release
			Other, please specify	B
EDO09694	B	Where did you look for clinical trial results?			Text area, no char limit		N	Skip Logic Group	Other Clinical Trial Sources
EDO09695		Please suggest one improvement you would like to see on ClinicalTrials.gov:			Text area, no char limit		N		Improvements

---

Sheet 6: Custom Qsts (11-11-11)

Model Instance Name:			red & strike-through: DELETE
NLM Clinical Trials v2			underlined & italicized: RE-ORDER
MID: hRlIhMU4IRp1NowpYUdwEw==			pink: ADDITION
Date:	3/1/2008		blue + -->: REWORDING
partitioned - yes
NLM Clinical Trials v2 CUSTOM QUESTION LIST
QID	Skip Logic Label	Question Text	Answer Choices (limited to 50 characters)	Skip to	Type (select from list)	Single or Multi	Required Y/N	Special Instructions	CQ Label
EDO09660		How did you first learn about ClinicalTrials.gov?	Search engine (e.g., Google, Yahoo)		Radio button, one-up vertical	Single	Y	Randomize	Awareness Source
			Someone recommended it
			Social media (e.g., Twitter, Facebook)					OPS Group
			Television or radio
			Medical journal article
			Newspaper, magazine, or press release
			Other government agency
			Other, please specify:	A
EDO09661	A	Other source			Text field, <100 char		N		Other Awareness Source
EDO09662		How frequently do you visit ClinicalTrials.gov?	First time		Radio button, one-up vertical	Single	Y		Frequency of Visit
			Daily
			Several times a week
			About once a week
			Several times a month
			About once a month
			Every few months
EDO09663		Which of the following best describes your role visiting ClinicalTrials.gov today?	Patient	A, G	Radio button, one-up vertical	S	Y	Skip Logic Group	Role
			Family or Friend of Patient	B, G
			Healthy Person	B, G
			Clinical Trial Staff	C, H
			Health Care Provider (e.g., nurse, physician, etc.)	D, H
			Scientist/Researcher	E, H
			Librarian or Information Professional	F, H
			Student/Educator	F, H
			Clinical Research Support (e.g. regulatory affairs)	F, H
			Medical Communications	F, H
			Institutional Review Board (IRB) or Ethics Committee Member	F, H
			Other, please specify:	I,F,H
EDO09664	I	What best describes your role?			Text area, no char limit		N	Skip Logic Group	Other role
EDO09665	A	Which of the following best describes the reason you are visiting the site today?	Trying to learn more about a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Patient
			Interest in volunteering for a clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Other, please specify:	J,G
EDO09666	J	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Patient Visit
EDO09667	B	Which of the following best describes the reason you are visiting the site today?	Concerned about family member or friend with a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Healthy person
			Interest in volunteering for a clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Other, please specify:	K
EDO09668	K	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Healthy Person Visit
EDO09669	C	Which of the following best describes the reason you are visiting the site today?	Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Clinical Trial Staff
			Interest in a particular clinical trial
			Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)
			Trying to learn more about experimental interventions for a disease or condition
			Other, please specify:	L
EDO09670	L	What best describes your reason for visit?			Text area, no char limit			Skip Logic Group	Other Clinical Trials Staff
EDO09671	D	Which of the following best describes the reason you are visiting the site today?	Trying to find a clinical trial for a patient with a specific disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Health Care Provider
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions for a disease or condition
			Other, please specify:	M
EDO09672	M	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other Health Care Provider
EDO09673	E	Which of the following best describes the reason you are visiting the site today?	Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)		Radio button, one-up vertical	S	Y		Visit Reason-Scientist
			Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions for a disease or condition
			Identify unpublished trials
			Other, please specify:	N
EDO09674	N	What best describes your reason for visit?			Text area, no char limit			Skip Logic Group	Other Scientist/Researcher
EDO09675	F	Which of the following best describes the reason you are visiting the site today?	Trying to learn more about a disease or condition		Radio button, one-up vertical	S	Y	Skip Logic Group	Visit Reason-Other/Generic
			Interest in a particular clinical trial
			Trying to learn more about experimental interventions (e.g., drugs, medical devices) for a disease or condition
			Interest in certain types of clinical trials (e.g. randomized controlled trials, observational studies)
			Trying to learn about clinical research
			Trying to learn about ClinicalTrials.gov policies (e.g., how to register, report results)
			Interest in a particular clinical trial
			Other, please specify:	O
EDO09676	O	What best describes your reason for visit?			Text area, no char limit		N	Skip Logic Group	Other
EDO09677	G	What do you plan to do with the information you are looking for on ClinicalTrials.gov? (select all that apply)	Contact trials that I found		Checkbox, one-up vertical	M	Y	Skip Logic Group	Infornmation Use-Patient
			Discuss with family or friends					Randomize
			Discuss with a doctor or other health care provider
			Seek more information on a disease, condition, diagnosis, or treatment
			Give information to family member or friend
			Look for trials in other registries
			Didn't find what I wanted
			Not sure yet
			Explore what you have to offer (just browsing)
			Other, please specify:	P
EDO09678	P	What do you plan to do with the information you are looking for?			Text area, no char limit		N	Skip Logic Group	Other-Information Use Patient
EDO09679	H	What do you plan to do with the information you are looking for on ClinicalTrials.gov? (select all that apply)	Refer a patient to clinical trial		Checkbox, one-up vertical			Skip Logic Group	Information Use-Non-Patient
			Use information for a project or presentation
			Improve my understanding of clinical research					Randomize
			Support new or current research projects
			Explore or support business opportunities in the field of biomedical research
			Seek further information from other websites
			Seek further information from ClinicalTrials.gov
			Include in systematic review
			Compare information with published trial results
			Didn't find what I wanted
			Not sure yet
			Other, please specify:	Q
EDO09680	Q	What do you plan to do with the information you are looking for?			Text area, no char limit		N	Skip Logic Group	Other-Information Use Non-Patient
EDO09681		Were you able to find what you were looking for?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Find Information
			No	B
			I was not looking for anything in particular/Just browsing
EDO09682	A	Did the information you found meet your needs?	Yes		Radio button, one-up vertical			Skip Logic Group	Info Met Needs
			No, please specify	C
EDO09683	B	What specifically were you looking for that you did not find?			Text area, no char limit		N	Skip Logic Group	Information Seeking
EDO09684	C	Describe why the information did not meet your needs.			Text area, no char limit		N	Skip Logic Group	Info Did Not Meet Needs
EDO09685		If you used the search feature of this site today to find your information, what method did you use?	Search Box (type in key words)		Checkbox, one-up vertical	M	Y	OPS Group	Search Experience
			Basic Search (including the search box at the top right-hand corner of each page)					Randomize
			Advanced Search (searching within specific fields, such as disease, location, treatment, sponsor)
			Studies by Topic (browse by condition, drug intervention, sponsor)
			Studies by Map
			I did not use the search feature today
			Other, please specify:	A
EDO09686	A	Other Search Experience			Text field, <100 char		N		Other Search Experience
EDO09687		Please describe your experience with the navigation process on this site:	I did not encounter any difficulties		Checkbox, one-up vertical	M	Y	OPS Group
			Could not navigate back to previous information
			Would often feel lost, not know where I was					Randomize
			Too many links or navigational choices
			Links did not take me where I expected
			Had technical difficulties (e.g. broken links, error messages)
			Links/labels are difficult to understand
			I used the search feature
			Other, please specify:	A
EDO09688	A	Other Navigation Experience			Text field, <100 char		N		Other Navigation Experience
EDO09689		Did you look at any summary results data tables on ClinicalTrials.gov today?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Data Table Results
			No	B
			I did not know that ClinicalTrials.gov includes studies with summary results information
EDO09690	A	Did you find the summary results data tables useful?	Yes		Radio button, one-up vertical	S	Y	Skip Logic Group	Data Table Results Useful
			No, please specify:	B
EDO09691	B	Why did you not find the results useful?			Text area, no char limit		N	Skip Logic Group	Data Table Results Not Useful
EDO09692	C	Have you looked for the results of a clinical trial in the past week?	Yes	A	Radio button, one-up vertical	S	Y	Skip Logic Group	Clinical Trials Past Week
			No
EDO09693	A	Where did you look for information about the results of a clinical trial?	MEDLINE/PubMed		Checkbox, one-up vertical	S	Y	Skip Logic Group	Clinical Trial Sources
			ClinicalTrials.gov summary results data tables
			Medical journal article
			Newspaper, magazine, or press release
			Other, please specify	B
EDO09694	B	Where did you look for clinical trial results?			Text area, no char limit		N	Skip Logic Group	Other Clinical Trial Sources
EDO09695		Please suggest one improvement you would like to see on ClinicalTrials.gov:			Text area, no char limit		N		Improvements