Formative Research to Support Active Surveillance of Myalgic Encelphalomyelitis/Chronic Fatigue Syndrome Among Schoolchildren

CDC/ATSDR Formative Research and Tool Development

Attachment E -School Surveillance GenIC--Question Guide for Face to Face Evaluation Interviews

Formative Research to Support Active Surveillance of Myalgic Encelphalomyelitis/Chronic Fatigue Syndrome Among Schoolchildren

OMB: 0920-1154

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Attachment E– School Surveillance GenIC

Form Approved

OMB Control No.: 0920-1154

Expiration date: 01/31/2023

Public reporting burden of this collection of information is estimated to average 1.5 hours per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information.  An agency may not conduct or sponsor, and a person is not required to respond to a collection of information unless it displays a currently valid OMB Control Number.  Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden to CDC/ATSDR Reports Clearance Officer, 1600 Clifton Road NE, MS D-74, Atlanta, Georgia 30333; ATTN: PRA 0920-1154

Question Guide for Face to Face Evaluation Interviews

The purpose of this focus group/interviews is to gain further insight into your experience with the school nurse led active surveillance tool. The information will help us know what tweaks may be needed on the tool as well as help us gain information for the manual we will be developing later as part of a national roll out effort.

These are guiding questions for the focus group that will build upon the participants’ answers in the written portion of their reporting form.

First, did you have trouble accessing the list of students who are chronically absent? What about separating those that were absent/withdrawn for health reasons?

Tell me about your experience working with students/families in identifying health concerns.

What took the most time?

What about addressing health concerns?

How did the care planning and intervention process go?

Which questions regarding ME/CFS were most helpful?



How well did the tool guide your practice?

What went well?

Where was it difficult?

What is missing?

Any unexpected outcomes or unintended consequences?

As you know we hope to develop a manual to help guide practice, what additional information would have been helpful to have?

What suggestions do you have for tweaking the tool?

  • How was your part included in a larger school community approach?

  • How was this part of the larger effort in your school/district to address chronic absenteeism.







  • Did this process increase their understanding of the school nurses role in chronic absenteeism? (why or why not)?



We would like to turn our attention to your experience submitting data into the national data platform.

Tell me about your experience

What went well?

Was it difficulty submitting by grade?

Where was it difficult?

We know you only had 2 months worth of data to submit. Do you think, in the future, it would be easier to submit just once at the end of the year? Or be able to submit some data periodically? (why)

What suggestion do you have for the data submission process?

Any suggestions for comments related to the following:

  • Ability to get students name/information?



  • Working with parents, teachers, faculty (any phrases or approaches that worked well)?





  • Ability to contact family?



  • Ability to categorize reasons?



  • Ease of worksheet?



  • What would help facilitate process?



  • Approximate time it took to use this process?

Anything else you would like to share to help us?



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AuthorErin Maughan
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File Created2021-01-13

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