Privacy Act Memo

DATE:

May 19, 2019

TO:

Nina Goodman, MHS, Senior Public Health Advisor
Deputy to the Assistant Director
Office of Market Research and Evaluation
Office of Communications and Education
National Cancer Institute

FROM:

NIH Privacy Act Officer

SUBJECT: Applicability of the Privacy Act: A Generic Submission for Formative Research,
Pretesting and Customer Satisfaction of NCI’s Communication and Education
Resources
I have reviewed the NCI submission for OMB to approve the combined request for A Generic
Submission for Formative Research, Pretesting and Customer Satisfaction of NCI’s Communication
and Education Resources involving the collection of data through interviews, surveys, focus groups
and web- or computer-based methods.
I determined that the Privacy Act will apply to these data requests which include the collection of
personal characteristics such as, name, race/ethnicity, income, education, medical/health status,
address, telephone number, email address and other personally identifiable information. The
information will be collected from focus group members and survey respondents and will allow for
follow up mail or phone contacts to encourage participation.
All presentation of data in reports will be in aggregate form, with no links to individuals preserved. In
addition, the raw data from the data collection are not retained once the data have been extracted
and aggregated.
This data collection is covered by NIH Privacy Act Systems of Record 09-25-0156, “Records of
Participants in Programs and Respondents in Surveys Used to Evaluate Programs of the Public
Health Service, HHS/PHS/NIH/OD.”
If you have any questions, please contact my office at (301) 402-6201.

Celeste Dade-Vinson
Enclosure